I eventually got the date for my catheter op sorted. (After 5 phone calls !!) AND I was right ! My dates were correct, so I am due to have it on Mon next ,( 6 more sleeps !)
I ,perhaps, could have found time to Blog last weekend , but actually I indulged myself in painting. It was bliss! I completed 3 pictures and am well on the way with another which I had started.
Monday was busy with physio, Laura (cleaning), Tesco, Becca doing my nails (deep purple), Dr Solomon talking about /discussing End of Life Decisions (not easy ,ever) and Janice, my artist friend, coming for lunch (3:00 by the time we ate !)
I've had two new night sitters recently. Consequently, I am extremely tired, as I never sleep well with a new person.
Today I went to the Hospice and Martin ( whom I know as he was hospital Chaplain when I was a presenter on Hospital Radio , at Halifax, and from when he did assemblies at my school in Hebden Bridge), and Hal, came in to sing with us. It was great ! I had my nails cut and a foot massage and a quiet snooze in a corner ! The bus that transports me is new and my wheelchair was placed in a virtually empty ambulance right in the middle. I felt every jolt and needed paracetamol for the pain on arrival at Overgate. Tonight I should have had standing practise , but was too tired. I'm writing this then cooking meal. Karen is the night sitter tonight, we get on well and she will help me shower.
Tomorrow I go to Sheffield to see Prof Shaw. Well I hope I will!! Snow, wrong ambulance, no ambulance, mean that this is 4th time lucky !! This will be a long day.
On Thursday, my college friend, Christine is visiting from Cambridge. YEY !!!!
On Friday Laura comes, then physio, and Barry will visit for a catch up in the afternoon.
On Saturday, I go to Rugby for the Baptism of my newest grandchild. This will be a mega journey and as I'm hiring the minibus, not without cost. I'm soooo looking forward to seeing people. It will be fun . But it may be sad also, as it may well be the last time I see some of these people. I doubt that they will ever make it up north. BUT Barry and Maria are coming with me, so they will be a great comfort, I'm sure.
So on Sunday a lie- in was planned,had I been able to arrange people to get me out of bed later than usual. BUT I have to go into hospital in Huddersfield at 2:00. Actually, I don't need to go until 7:00 on Mon morning, but there are no carers to get me up early. My op is on Monday and I will come home on Tues.
So , a busy week. I trust you will forgive me if I don't Blog for a while. OK??
Hope you like the music I am leaving for you.......But most especially for all of us with MND.
HUG ME, I'VE GOT MND.