Tuesday, 17 September 2013

Unfortunately this is Eliza and Christina (Nikki's daughters) here.

We are sad to let you know that our mum died, peacefully, on Sunday 8th September 2013 at about 8pm.

Eliza writes:

She did go for the PEG operation, which, in itself went well, but the got pneumonia again. The antibiotics cleared her chest, but her breathing became s difficult and she wasn't comfortable. After a week in hospital, she chose to go to the hospice.

During her three day stay, she was looked after and cared for by the hospice staff with such kindness I cannot thank them enough. Friends came and visited and Christina and I were by her side. She had already ripped off the breathing machine it was "driving me mad, the noise is driving me mad!!" (The medication and some oxygen allowed her to breath regularly). Her breathing slowed and as I held her hand she gently passed away in her sleep. I am so glad to have been there.

I don't know what else to write right now, I'm surprised I've managed to even do this. However,I know how much it meant to my mum that you followed her and her blog so I thought it only fair.

We may write here again after the funeral, which is to be held on Friday.

I know many of you were on twitter with Nikki, but if you do want to comment, please do so here, it would be a lovely way to 'end' this blog.

Eliza xxx

Christina writes:

Eliza has done so well to write what she has written above, but thought it nice to also comment myself too...

I'm sat here with a (large!) glass of red wine (my mum would be proud!!), trying to think of what to write.
I've never written on a blog before... Mum made it look so easy! She was so so proud of the 'hits' 'followers' and 'tweets' from the blog... I too read it every day!! So on her behalf, I would like to say a massive thank you to you for reading, following and tweeting!!

As you can tell from the title of the blog... My mum loved a hug. I will miss my mum's cuddles so very very much. We even named a 'hand holding post' at her bedside. Many friends and us held her hand that day. She would have felt very comforted I'm sure. I'm very proud that Eliza was holding her hand at the end, and that I was by her side.

Please perhaps think of our mum on Friday and say a prayer of peace for her.

Hugs Chrissie xxx


  1. Dear Christine and Eliza,

    I am saddened to hear about Nikki passing away. I have followed her blog since early in her diagnosis and would worry if she went weeks without typing a word. I now know she's at peace.

    My deepest condolences on your recent loss

  2. I am so so sorry to hear this news. She was an inspiration! My mum has MND and it has helped so much for us to gain an insight into what your mum, and mine, have to deal with. My mum will not tell us you see! She was so proud of you, that was evident from the blog. Many thanks for letting us know, as it can't have been easy. My thoughts will be with you all at this sad time, Karen xx

  3. Though she has passed, I feel Nikki won her battle with ALS/MND anyway because it didn't kill her spirit. Thank you, Nikki, for all the posts; they have been a comfort. Rest in peace.

  4. I'm sorry to hear Nikki lost her battle with MND, I lost my dad to ALS in 2009 and know how heart breaking it is to watch someone you love die of this disease, we all have angels in heaven watching out for us now. They are all dancing in heaven together! My thoughts and prayers are with you.

  5. I'm very saddened to learn of this. Nikki was one of the first bloggers I connected with when I was first diagnosed. Even when it was obvious life was becoming increasingly difficult, she never lost her sense of humor. Even though we were physically far apart she was and always will be close in my heart.
    Eliza and Christina, Thank you for taking the time to let us all know. My thoughts are with you both during this difficult time. I hope you both to know of all the love, laughter and virtual hugs she spread across the globe. I'm glad you both were able to be with her as you wanted. Take care of yourselves, April

  6. I was shocked to read of your mum's passing and saddened . Nikki was an inspiration to many with her positive attitude
    I wish you well, hug to you both x

  7. A wonderful blog, your mum was truly a wonderful mum was diagnosed 7 weeks ago and I know we have a heartbreaking journey ahead of us but your mum sounds so like mine....strong giving with a huge heart and never one to ever bemoan her situation.....always putting everyone else first....I find contemplating a life without her very hard, but we fight to give her the best life we can....sending you our love and thoughts karen x

  8. I miss your mums' blog and have been thinking of her at this festive time. I do hope that you, Christine and Eliza, that you enjoyed being with your families this Christmas xx