I'M BACK !!

After the most difficult week I'm back !

I went to see Prof Shaw in Sheffield last Wednesday  All went well, but glad I remembered to take snacks as It was a very long day. All went as ever , just the check on my progress... do you call it that when its a decline ?? But those of you with MND will understand .

Thursday and my dear friend Chris came for the day. She was laden with goodies for lunch, plus  beautiful flowers. Chris and I were at college in Leicester together . We aslo had children at Mill Rd in Cambridge at similar times. We had sooo much to talk about . It was a splendid day.

On Friday I got ready for the baptism of my grandson Oli, and also for my hospital stay. Dear Laura buzzed about ironing, packing clothes, packing presents... and as ever looking after me so well,

Saturday morning came. The mini bus from Calderdale Volunteer transport arrived as did my mates Barry and Maria. (Barry and Maria were originally to take me in their car to Rugby, but as I can't now transfer to a car they joined me in the mini bus.) I was so happy to have their company. John, the driver, was brilliant, a lovely smooth safe drive. We arrived just on time, and I was thrilled that my girls came out to meet me. Wonderful ! I was escorted to the front row in the church and so had a brilliant view. People came to welcome me . It was lovely. But he best bit in the service was when my other grandson, Mallae spotted me and  Wandered up saying: Its grandma. Grandma, Ive got tigers , Grrrr !!! How lovely was that.! After the service, we all went back to the Dun Cow in Dunchurch. There was a splendid plates of food and lovely cake   and I had lots of glasses of champagne ! YEY!!! We left about 5:00 and got home by 9:00, Just prior to leaving I had a word with my children's dad. I said goodbye , as I doubt that I will see him again. I found it very emotional. But necessary. I'm glad I did stretch myself emotionally.

On Sunday I went to hospital to have a supra pubic catheter fitted. This episode might well form the basis of a book !! Certainly no time now to write about it. Basically I had feared that people wouldn't know much about MND and thus the handling of my body might be an issue. It was. AND it was far far worse than I ever imagined it could be ... just a quick example.. 1, I was asked to undress and when I said I couldn't, eyes were raised, : not at all they said ?NO i responded. 2. I was asked to raise my knees, I responded, Well you put them in place please.They slithered down. Why have you done that I was asked ! Because I have no control I tried to explain.    3.  But the best (!!) bit, was when a hoist with a too small sling was used. It cut into my legs. I was flat on my back in the air and my legs so splayed that they wouldn't come out of the wheelchair, without considerable pain. I was told I had to suffer the pain for a while whilst they managed me!! Boy did it hurt. But the freedom without the urethral catheter is wonderful ! That type of catheter truly must be a legal form of torture. OK my tummy is sore , but it's nothing compared to the pain I had with the other sort.

Since Ive been home . Ive rested , grateful for the wonderful sunshine. These pics were taken today as I sat in the sun.

looking to the right 

straight in front of MM 

looking left from MM 

HUG ME. I'VE GOT MND