I guess this is a diary of my thoughts, findings and feelings since being dianosed with MND in December 2011.
Showing posts with label Mobility. Show all posts
Showing posts with label Mobility. Show all posts
Tuesday, 17 January 2012
NEWSNIGHT...DLA
Just watching Newsnight, about DLA. Having just applied i don't expect to get the care element at the moment... but will do eventually (Stephen Hawking has 3 carers, and it's likely that I will need this type of care in the future) but for now I desperately need the mobility element of DLA.
I will soon need an adapted car if I am to be independent. It's lovely that so many people visit me (Thankyou), but to be "normal" I need to be able to get out and visit people , to go to shops, to go to the pictures/theatre/galleries,... to see my family.
I welcome a medical assessment if it would move forward the time when i get this help. I do need it. Please God I get it.
I sent my form 1 week ago... watch this space.
I have a life terminating illness ie more than 6 mths but it is definite. There is no cure. Most people survive 3-5yrs with ALS,(an exceptional few, 5+yrs.. I hope I'm exceptional! ). But who knows how much of this time will be spent with any kind of movement, and thus freedom. I take one pill, riluzole, that might extend my life by 3-5 mths.The only medication there is.
Eventually all my muscles will freeze and I simply won't be able to move, speak or swallow. So I do need DLA mobility now: to enjoy the freedom of life/movement whilst I can.
So, yes, some people may be cheating the system, so I'm all for assessment... but please make it soon!....and .....
HUG ME, I'VE GOT MND
Subscribe to:
Posts (Atom)