Sorry for the few days gap. I've been in hospital at Sheffield.
Prof Pam Shaw is an expert in MND and I was there to undertake her protocol for testing MND.
What tests didn't I have? Can't imagine.
Had CT scan, MRI, Lumbar puncture, 21 different vials of blood; electo myo-cardiogram (sp?), X Rays, filled in questionnaires, talked with students, ....... It was all so professional, so kindly and I felt so safe.
Got back home this afternoon,....... will have to go back for full results in one month.
Now busy with planning for MND fundraiser on Sunday at the Platform Gallery , Todmorden...... think all is is place,,, except I've forgotten to order milk.. easily sorted will get Sunday morning..
Thanks for reading over 5000 hits as of today.
Off to bed now, need rest.
HUG ME , I'VE GOT MND
Showing posts with label Todmorden. Show all posts
Showing posts with label Todmorden. Show all posts
Friday, 11 May 2012
Tuesday, 21 February 2012
Monday, Monday...
Today has been extremely busy and tomorrow will be too! But the rest of the week should be more calm and give me time for painting.
Today I went to see the "Breathing" consultant.. Had a chest X-ray and was told I would be sent an appointment to have a base-line strength of my muscles test.ie. those muscles that control my breathing. My breathing is ok now, but inevitably the muscles will deteriorate.
Generally when you exercise , muscles get stronger... when you have MND , the more you you use muscles the weaker they get, so that's why fatigue must be avoided.. Chest muscles deteriorate (but aren't yet) , as my leg muscles are doing.
Enough of factual medical bits for now... after all this I went to collect my new reading glasses... bright blue with lime green.. and chose the frame for my varifocals. I have gone back to rimless, the bridge over the nose is pale pink, as are the sides, so a good days work.
I'm shattered. Rebecca was looking out for my return tonight, carried my parcels in and made me a cup of tea... even so it was an hour before I had the energy to take my coat off!!
Mustn't eat or drink any more tonight, the delights of fasting blood test in the morning . Off to the Hippodrome to put up my exhibition: Is Anyone Perfect. It will be in the foyer during the run of the play Nobody's Perfect, which opens on Wednesday, through to Saturday.
HUG ME, I'VE GOT MND
Today I went to see the "Breathing" consultant.. Had a chest X-ray and was told I would be sent an appointment to have a base-line strength of my muscles test.ie. those muscles that control my breathing. My breathing is ok now, but inevitably the muscles will deteriorate.
Generally when you exercise , muscles get stronger... when you have MND , the more you you use muscles the weaker they get, so that's why fatigue must be avoided.. Chest muscles deteriorate (but aren't yet) , as my leg muscles are doing.
Enough of factual medical bits for now... after all this I went to collect my new reading glasses... bright blue with lime green.. and chose the frame for my varifocals. I have gone back to rimless, the bridge over the nose is pale pink, as are the sides, so a good days work.
I'm shattered. Rebecca was looking out for my return tonight, carried my parcels in and made me a cup of tea... even so it was an hour before I had the energy to take my coat off!!
Mustn't eat or drink any more tonight, the delights of fasting blood test in the morning . Off to the Hippodrome to put up my exhibition: Is Anyone Perfect. It will be in the foyer during the run of the play Nobody's Perfect, which opens on Wednesday, through to Saturday.
HUG ME, I'VE GOT MND
Subscribe to:
Posts (Atom)