,,,,,, AND NOW THE FULL SET ????

It seems to me that there are stages of MND when you need certain equipment,
It starts with a walking slick, if you have ALS as I do.
Eventually you require:... in no particular  order.......

• a wheel chair
• a hoist
• A special bed
• Help with cutting up food 
• A spoon to eat
• Someone to care for you.. this extends to help with even wiping your bottom !!!
• Breathing help  .. NIV
• Catheter
• A collar
• a peg

This seems to be the full kit for MND.

I have nearly all of these except the PEG.........  BUT....... I am going into hospital tomorrow to have an op on Wednesday , to have one fitted .. under full anaesthetic. 

So I will have full kit !  lucky me !!!

It is sad that this indicates  the march of MND. BUT It does progress, no matter how positive you try to be.

I have been diagnosed for 21 months now. and indeed started to limp 7 months before diagnosis. 

Does this mean the end is near??    I hope not. I have tried to have challenges along the way, The one I am busy with is getting the paintings ready for my October Exhibition.  It is to be called "PAINTINGS BY ONE OF THE 5000"

My next challenge is to plan my funeral..... watch this space....

But for now .. I'm due in Halifax at 4:00 tomorrow and my peg will be fitted on Wednesday..... Think of me...

HUG ME, I'VE GOT MND 

PS SOME OF MY PAINTINGS

What a day! Dr in the morning re my funny tummy (was sooo poorly yesterday!!) Then at 2:30, perfectly on time the ambulance arrived to take me to Hx to see the Neurologist. It was one of the new , expensive ambulances... that does not fit in my wheel chair... So I never did get to Neurologist and apparently the only one that will allow me to travel safely is very old and has the nick-name "Doris" !!!

So I do hope that Doris is available when I go to Leeds next Monday to see the breathing specialist... Breathing is getting a problem... well you just need to do it don't you !!

So as a PS, and as I have been asked several times, I will show you some of my work.

HUG ME, I'VE GOT MND