I CAN'T POP , I'VE GOT MND !!

So , day before yesterday,Thursday, and I am beginning to get over the Pneumonia... coughing a lot.... but things are shifting and though I am weak, I'm so so much brighter and happy to be feeling relativly good.

Thursday evening:  And , that strange feeling that indicates the start of cystitis comes over me....
So I took paracetamol , drank gallons of water and took Cymalon.......
        

Friday morning, I havent warded it off,  and I know its another call to the Drs !....... (And I now have thrush too ( I'm not happy, but coping with this unjustice !!!!!.Didnt think you could get both of these are once !))

Rang Health Centre. After the usual procedeure of the receptionist directing the call, the  Dr rang back. I explained my problem.
Dr: Ahh Thrush, Yes.  You've had lots of Antibiotics , only to be expected . (I concur).
He continued:I'll do three things. You need antibiotics for Cystitis , treatment for Thrush and a bottle for a specimin......
Me: Ok I say ,fine. But, I have a lot of experience of cystitis  and the antibiotic Keflex sseems to work.
Dr: Ahh, but until I have a specimin we wont actually know which one works, so we will give you the one that we generally use. 

(Now this did seem silly to me, as if I know which generally works, and the choice of antibiotics is open until you have a specimin analysed, then why, WHY??? deliberately choose one that isn't the one known to have worked previously........ 

So , to continue.

Dr:  SO . I'll get these prescriptions written up, and you pop down and pick them up...

Me: POP DOWN , POP DOWN !!!........ 

I've got Motor Neurone Disease. Im in a wheelchair. I'm getting over pneumonia...... I CAN'T POP DOWN!

ICANT POP UP. 

I CANT POP, ANY B.......... WHERE !

The saga continues. I manage to intercept Laura on herway to clean, and she gets prescription.

We have cup of tea. 

I take first dose.

5mins later I have itch on back. Get Laura to scratch.

7mins and I have itch all over back.

Within 15 mins I am itching all over. Tearing at the skin I can reach, thrashing around . Trying to deal with the agony that is a mega allergic reaction.

Another call to Dr.
DR: OH You need antihistamine and I'll write a prescriptoon for the Keflex that you said worked before..........

So 24hrs after this saga, Im on the mend....... feeling more comfy........... but Bloody Mad. WHY, WHY, WHY......... if I thought a certain antibiotic would work and the choice was open ended, WHY WHY WHY didnt that get prescribed...... is it a power trip for the GP???????????

AND WHY, WHY, WHY........ does the GP not know I have MND.

(OK,  I have only been with this Health Centre for 6 mths..... But you would think that for people who are teminally ill, a heading would come upon your notes page ......... After all treatment and expectations do change if you have this, or any other terminal illness.  ( Well I would have thought, what do you think?).)

HUG ME, I'VE GOT MND

TWICE IN A LIFETIME , ENOUGH THANKYOU !

The first time I got pneumonia I was 5. I lived in a v small village called Cherokee Sound, part of Greater Abaco, Bahamas Islands.

On our island there was no Dr. There was a woman , Miss Netty, who delivered babies.. But she had no training in medicine.

So,............. I had pneumonia, and the treatment prescribed was to inhale turps in steamy water.

59 yrs later, well last Wednesday to be exact, I spent a great evening with a friend... Eating, drinking, chatting. One of the the things I ate plenty of, was pickles. At bedtime I noticed my epiglottis was swollen and I started to gag...
Thurs felt tired after little sleep but did go to have nails done...YEY!!!
By 5:00 I felt v v tired and unwell, and went to bed... As soon as I lay down I started to gasp for air..... Thankfully a friend , wanting to borrow a glue gun , popped in at 7 and found me in this unwell state.

Duty Dr called.... Much answering of questions... Eventually a Dr arrived  and said I had a virus but no chest infection, but gave antibiotics as a precaution.
My friend  left. I lay down. Could not get any air, managed to contact my friend who returned... Maybe I was having a panic attack??

Next day Liza arrived. She was amazing.. Putting me to bed, dressing... All sorts of things which she, as my daughter, probably never expected to do.

BUT by sat evening I was reacting to the antibiotics(badly).....oh! I forgot to add in here, that a hosp bed was delivered, but with such soft mattresses on that I sank and could not move. The restriction caused more breathing probs. so out of hrs dr called again (at 7 pm ) , he arrived at 2am.

The doc talked to Liza , ( Does he take sugar?) , and prescribed different antibiotics and codeine  He suggested we call again in morning ( actually it was morning! ) , and get another dr out.

It was explained that Liza was leaving on sun lunch and that I would be on my own,

Well when the going gets tough you have to just sort it... I contacted friends and arranged for someone to be with me in the afternoon and someone to stay overnight.

Of course lack of sleep, stress, lack of oxygen was taing its toll and by Sun was not eating (upset tummy) and not sleeping (couldnt move in bed) and so weak I rarely managed to get myself off the toilet, and indeed had a very weird tun where the world turned into black, white and sepia and I sweated...... My head continued to spin......... In the night  J was up every two hrs. trying to help me in one way or another.

Monday, and local GP arrived and a pressure sore nurse, and a carer and a PA and the woman to shower me....  The GP  said I wasn't ill enough to go to hosp..
Once again I organised the day and night to not be alone for any long periods of time.

On Tuesday a carer  to sleep over was arranged. Poor woman had to travel from Bradford by bus. She rang from HB and didn't realise Old Town was a another bus journey away  I said get in a taxi, I'll pay. She arrived .

So last night was spent with the help of Maxine, we struggled to get my legs comfy, despite the removal of a mattress I still sink in the bed and am trapped. I couldnt breathe, couldnt move.....

The rattle from my lungs loud, my  tinnitus buzzing, and the constant drone of the bed engine, enough to make a well person scream !!

So this morning I asked for a home Dr visit. It was then found that my SATS are v low, one more point and I must go in to hospital... and the diagnosis of pneumonia given.. More , v strong ???, antibiotics and steroids.
I have never taken them before and apparently you get a buzz.. but this didnt happen to me.........
Then add into this mix Imodium as every tiny bit of food enters , then exits in 90 mins....
Another friend ,B,went for prescriptions the back down for Imodium.

I've not slept for a week , not kept any food down for a week........ and yes, I'm moaning !!!! and feeling sorry for myself and feeling hungry and tired and anxious and frightened and unsafe.......

   AND     Thanking god, that I have so many wonderful friends,  who seem determined to get me through this week.  

Thankyou, you all know who you are.



So here I am... writing all this down.

 For your enlightenment ? Perhaps ??!!!

But No! ...........Actually,  it's a cathartic exercise for myself. 

You see, If all this is in cyberspace then its away from me , and perhaps I'll get well soon !!! 


HUG ME, I'VE GOT MND