SEPTEMBER15TH, FIRST OF THE NON CATCH-UP WRITINGS!

This morning I woke with pain in my right hip. I had woken in the night also with  pain in my left hip. I think this is because, whereas a person without MND would naturally turn in their sleep, then a person with MND, simply doesn't. There must be a muscle resistance to turning easily, and thus you don't.

I have been asked by social services if I need help turning in bed at night. So Far I've said no... but I can see a day when this will be necessary. For now I'm thinking , should I have a different mattress?...... Something to talk through with the OT and or Physio.

Got to kitchen , put kettle on, fed Meggie. Looked at her litter tray, another early morning job, clearing it out . BUT she hadn't used it until last night. Shock, I guess, and....BOY!!! did she use it!! So my next task was to bag it all up, put new litter in. Put bag in bin-bag and hope someone would visit and put bin-bag in bin. (I can.t get there at the moment, car parked wrongly, but after driving lesson today will park so that I can get there.

In doing litter tray I spilled (clean) litter over the hall-way carpet, and can't reach the dust-pan and brush. It is very difficult to get the chair into the utility room without getting stuck. This causes real probs on using the washer and the dishwasher............... more later.

Just settling to Muesli and coffee when I also texted Chrissie. Apparently Ray (Grandpa) not going over ,as Eliza's dog , Stomp, had, had flees!  As new parents I understand that they are cautious, and I'm sure they will reach a balance between risk and and caution soon.

Whilst all this was going on Elsa phoned and visited with Deborah, made coffee, put on washer and dishwasher and put bag in bin . YEY!!

Showered. Just drying when knock at door, doorbell didn't work (!), Tom and Iris at door. Tom pushed me to bedroom and closed door , I dressed ,he made a cuppa. How lovely it was to see them both.

After they went I had two practise runs at locating the chair in the car. Good at getting in, first time both times... but getting out SCAREY!!!!! I never was any good at reversing!!!


Justine came at 3:30. I am doing the sketches which the photographer shows to the ladies of Calender Girls, on the stage . Play at Todmorden Hippodrome, opens Oct 10th.

I waited for Dennis , driving instructor... When he arrived we got (well he got ) drivers seat into car. We went for a drive. He realised how difficult it was for me, as hill starts v v difficult if not impossible. The answer to the problem is to disengage the accelerator  from the brake.. which may be illegal... or move to a flat place like Norfolk!!
I didn't actually drive... He parked car so that now at least I can get to garage... but drivers seat in, ......no empty place for w..chair.  Abandoned, till help is found. 

I have spent £3000 on car and £3000 on adaptations.. and then there's my weekly Motability money!! .. and I still cant drive. I'm still not free. I'm so frustrated! I just want to weep. Im fighting MND.. I don't want to fght a B car too.. this is hard... so so hard. I feel alone and so B angry, so diolusioned so so B upset... words simply cant convey my anger and feelings...

Elsa came in tonight and we are to plan a campaign... £6000 brings a lot of taxis!!
Watch this space. Elsa is B mad on my behalf, and I am so grateful, because I so need help, so need an advocate.. I'm loosing the effort, don't have then strength, at the moment, to fight re cars and every thing else that daily life entails.

HUG ME, I'VE GOT MND.

CATCHING UP

LAST NIGHT, Sorry I didn't write yesterday but i spent the evening with my friend Elsa. We went for Fish and Chips, which were lovely, hot, tasty and filling.. and the glass of wine made it.
BUT then we went to Hebden Bridge Picture House to see Wuthering Heights. Well the least said the better. I really did not enjoy the film. It was dark, bleak and unpleasant.. and heaven only knows what it had to do with the book. It was long ..... and I slept for half of it!! 
I got home too tired and p.....  off to write Blog.. so sorry!
READING: So I got home, had a glass of milk, and went to bed.. and : for the first time, since the diagnosis of MND.. I read! Yey!! Haven't been able too for weeks. I started the thriller, given to me by Tom , my neighbour, for Christmas. It is a good choice, but I wouldn't expect anything less Tom Palmer is an author... and knows exactly the type of books I enjoy. But what a thrill for me... to actually be turned on by a book again ! I'm getting back to normal!! Can't wait to get to bed for tonight's read!
IN MY BATHROOM: What an error! My bathroom window has the bottom half made of obscured glass. But the top half is clear, no-one can see in, but I can have a view of Cross Stone Church and the hill above. Well I thought no-one could see in.... but ...didn't plan for the scaffolding on next-door but one!
So there was I, drying myself off after my shower, spraying deodorant, powdering my-self with baby powder... and I looked up... there was a man on the roof... with a perfect view of my imperfect body!!
Note to self.. draw blind!!!
YOU NEED TO BE A FIT OCTOPUS:  To put together a wine rack! Life is too short for me to do these tasks.. actually without MND, my life would be too short. Rebecca helped, and Steven finished off... and  I put the wine bottles in place... simples!!!
ELECTRICIAN: Elsa put me in touch with a wonderful electrician, Richard, who put up my amazing chandelier.... it's red, pink, blue with millions of beads! My studio is now nearly finished!!!
THE SWAP: Tonight Steven, with Helen ,I hope, return to put together two CD racks.. and the swap is a mat I bought at a bargain price from LIDL... but it is too wide... so it will go to the Todmorden Hippodrome to be used on a set.. and I await the Ikea delivery of one that fits!
SO ALL'S WELL THAT ENDS WELL:  So a busy 24 hrs, but very productive. I'm so near to painting again, it's giving me quite a rush!! Can't wait to be able to smell the turps and paint very very soon...
But I still need, and value, your help everyone,so thankyou, but don't forget:
HUG ME , I'VE GOT MND