TODAY I FEEL SAD.

Today I feel sad.

MND certainly is a  progressive ,and for me, progressing disease.

This morning I couldn't stand , as I usually do, when getting out of bed and doing the transfer to my chair. My night carer had to help me.

Then, after she left, I needed the toilet. 

I couldn't get off. I tried on and off for about 20 mins, during which time I cried. 

Eventually I rang my neighbours, who fortuitously had popped in yesterday with their phone number!

So they got me off the loo! and \Ive spent the day trying to be positive, but not really succeeding.

I feel that if I were to go into the studio and paint, it might help. But my creative mind is blank at this moment.

Sorry to be forever moaning, but this is a diary of living with my MND.... for the public to read,if interested, for my family now and in the future. And you can't always be positive about things when you have MND. Because the reality is that it is horrid, horrid, horrid!  And mostly we do look on the bright positive side, but today, for me, that's a big ask.

Lets hope tomorrow brings some sunshine and joy.

HUG ME, I'VE GOT MND 

WHY NOT EVERY DAY ?

As you are now reading this, you will see I have made three contributions today... I must be in writing mode, you may think... but no,  thats not it...

I simply cant write every day because very often I am far too tired. I have mentioned the compete exhaustion you feel with MND,................
.................. and actually, it's often  likely that I'm feeling low. I write sometimes about the difficulties I face, but how boring would this be if it was only one long long rant.
...................And true to say I actually don't want to rant all the time. and I don't rant all the time either.
 I  feel/ hope, I'm quite accepting and am living with  this illness. It is my thought/ belief, that to rant, to lack positivity, to moan endlessly, would do me or others around me no good at all!

BUT  I do admit that I do use the word beginning with S... . quite often!  For example when I drop something,( its so hard to pick things off the floor without falling,),  when I spill the water I'm carrying to change Meggies bowl, etc...... there's a link here, isn't there? Its about dropping things and not being flexible... so I'll use another of my favourite expletives,  RATS!!! But that's how it is...

HUG ME ,I'VE GOT MND