Chrissie , Andy and Oli left at 11:30 today. We had a good time... my only negative, ( and they do know this), was that the TV was on constantly and at a sound level where I could barely hear! (Age ???). So next visit , pls no cartoons and we watch when I too ,can hear!!! AND Andy no more threats of leaving tv on The Simpsons ,on mute and hiding the remote... do you want to kill me off???!!!! You know I'm amazing ,and your son loves chatting to me... so no more threats!!!!! LOL !!!
That aside, we had lovely time with lots of pressies, and lots of visitors. Some of Chrissies school mates called in with their children..... how lovely was that? Jane popped in with Gin and flowers, YEY!!. My carer /pa/cleaner (Laura), came on Christmas eve with two other brill mates and daughter , to bring me a stocking . WOW what fun !! and so much contact via txt, facebook, twitter and phone. I sent cards to the four neighbours, with whom I have I spoken a few words, and have been thrilled to get lovely messages back from them all. People are amazing !
Today I went to the dentists as they have bought a ramp... I couldnt get in on my last visit without the help of passing strangers........... I tried out ramp.. it works. Nick, the dentist was horrified that I had such trouble entering and will do all he can to make things easy. I did ask if he had other patients in w. chairs. He has but they are transfer chairs.......... I did admit that I could be brought in a transfer chair but absolutely didn't want to, as I want to retain my independence for as long as possible. Bless him, he completely understood and accepted this. I think he recognised that this was/ is important to me and might well be important to many others. He is doing his very best to make the premises accessible... in some part thanks to me.
As I got back from Tod, the phone rang. It was the woman who co-ordinates the health environment... she had had my email forwarded to her from Craig Whittaker MP re my issues re tardy response to need , well my needs, with MND........ watch this space !
Liz rang and asked if she and her dad could pop round... YES was the answer. Liz is a great friend but her dad is such a real gent and as he lives in London I rarely see him.
In advance of their arrival, I put on the fire and went to put on the wall lights. POP!! Lights fused. Keys and torch in hand, I went to go to circuit breaker in garage( first time )......... on my way I noticed that green van back exit door not quite closed. Three goes... up and down, up and down, up and down ...... still not closed.
OK one task at a time. Circuit breaker... sorted ! YEY!!!
Back to (B) car...... up down , up down........ no, a definite fault.
Liz and Ralph arrived. Decided glass of wine, then RAC......
Called RAC at 6:30... they arrived at 6:55........ fault fixed. Some WD40 as the door was jamming fixed it. AHHHHHHHH ! I said, sorry. I should have done that myself..... NO said kind RAC man. You need a track record of the faults on this car. Do ring us for any fault.
Well that salves my conscience ! And , yes , I will ring again.
RAC are brill, the (B) car isn't !!! Fourth visit from RAC.
So as you see, things are back to normal. I'm here Blogging, wind is howling and there is red wine and also a pack of cigarettes to my left!!
HUG ME, I'VE GOT MND
I guess this is a diary of my thoughts, findings and feelings since being dianosed with MND in December 2011.
Showing posts with label ramps.. Show all posts
Showing posts with label ramps.. Show all posts
Friday, 28 December 2012
Wednesday, 26 September 2012
....AND TODAY'S NEWS EVENTS.....
- I don't know if I spelled TODAY'S correctly !
- My fingers keep landing on the wrong letters.. have to use spell check extensively.
- York, what a terrible night the people near the river will have, knowing it will rise till 8:00 tomorrow morning.
- My new cleaner, Laura, started today. The house sparkles. YEY!!
- Spent hours on the computer today and yet have only just got to write this. Where does time go?
- Had shower tonight as have to be up early tomorrow, ready for hospital transport at 9;00. I'm wondering if there will be a wheelchair lift, or the dreaded double ramps, ie to get in ambulance.
- Karen and Anne came to walk me today. They know Laura , so a party could have ensued... but we got down to the serious business of my walking. I did a whole circuit of the house, but was shattered after.
- Karen needed to clean lounge then, so was glad to retire to lay on bed for a while!
- Ginny rang and is coming in tomorrow, more boxes to be sorted.
- Most amazing the car brake part is in. ...........Well half of it! No-one realised that the part needed was actually in two parts... so now a another few days wait for the second half. The phrase Booze up in Brewery.. comes to mind.. This is simply un B lievable... how can professional (?) people be so dim, so useless... totally beyond belief.
- Andy Williams died today. My mum loved his show... all except for the last last song.. "May Each Day Of The Week Be A Good Day.."
- I didn't like the show, except for the last song!!
- Do I still like it? Will check on You Tube !
And yes, I do still love it. Smultchy I know, but what's wrong with smulch!
Thank you and Goodnight
HUG ME, I'VE GOT MND
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