Today I spent one and a half hour working with my physio and OT, trying different methods of getting off the floor. The was exhausting.
So exhausting, that I then spent another three hours in bed getting over the exhaustion!
That's another 4 1/2 hrs of my life gone.... what a waste!
But a necessary skill as I have ended up on the floor several times recently and had to call for help.
HUG ME, I'VE GOT MND
Tuesday, 31 July 2012
Monday, 30 July 2012
THE ADAPTATIONS WE HAVE TO MAKE TO OUR LIVES
I'm using the royal "We" here, standing for those of us with MND, especially those of us who live alone.. If this isn't you, I'm so glad.....BUT it is me.
First Adjustment:This morning my first call was to my OT. I have found that I can no longer get off my downstairs toilet. I have bars to hoick myself up, and a frame, but what I could manage two days ago, is no longer possible. So the call was to ask for the seat extension that I have upstairs. Hopefully this will come with her visit tomorrow. As of today, I have to plan loo visits to have enough time to get there via stair lift. And we all know how slow they can be! So planning esential, none of this last minute rushing, the lift takes ages then I have to hold on to walls to get to bathroom... No upstairs wheelchair. But hopefully a special seat will sort tomorrow.
Next adjustment of the day. I have been able to sit on stool to dry my hair in front of dressing table. Yesterday I couldn't get up in my usual fashion, ie using the dressing table as leverage. So I got on floor , (silly me!) , crawled to bed thinking I will manage to pull myself up. But no. Thankfully Eliza was here. She had to place my left leg at right angles to the floor, then support me from the waist whilst I used all my energy to flop onto my bed.. We got there!!!!
Today having washed hair, I decided to leave it to dry without its usual blow-dry. Not a good look. Rebecca visited and has fixed a mirror and my hair dryer by my bed. So no more bad hair days!!! Yey!
The adjustment re cooking: I love roast dinners... And quite honestly am getting sick to death of microwaved meals. So this evening for dinner I'm planning pork chops, stuffing, mashed potato ( a concession, found in fridge from M& S), with gravy and frozen veg.
So at 5:00 I chopped onion to add to stuffing mix... Good tip, it tastes rather better .... But to chop I have to wedge myself against work top.. This takes a lot of energy. Undaunted I fill kettle with water. Very difficult to lift from sink to socket but achieved! Yey! Kettle boils . Now to lift again. Its so so heavy I splurge too much water in, never-mind, add more stuffing mix. It spills! Remember, all this time I'm standing only because I'm taking most of my weight pushed against the work top. So now I have stuffing ready. But have to clear mess. Some on floor. No hope of clearing up! And cleaner doesnt come agin till friday.. At this rate I'll have mice!! Thank goodness its 5:57 so 3 mins early I allow myself a drink! The rest of the meal will be cooked when I've rested!
6:00 News now! See how the rest of the world is coping.
I expect ill eat my dinner about 8:00, not too long to wait! But pre ALS, it would have been sorted and I could plan to eat when I wished, and not just when my energy levels allowed me to complete cooking. RATS!!!
Still it will be worth the wait!
HUG ME, I'VE GOT MND
First Adjustment:This morning my first call was to my OT. I have found that I can no longer get off my downstairs toilet. I have bars to hoick myself up, and a frame, but what I could manage two days ago, is no longer possible. So the call was to ask for the seat extension that I have upstairs. Hopefully this will come with her visit tomorrow. As of today, I have to plan loo visits to have enough time to get there via stair lift. And we all know how slow they can be! So planning esential, none of this last minute rushing, the lift takes ages then I have to hold on to walls to get to bathroom... No upstairs wheelchair. But hopefully a special seat will sort tomorrow.
Next adjustment of the day. I have been able to sit on stool to dry my hair in front of dressing table. Yesterday I couldn't get up in my usual fashion, ie using the dressing table as leverage. So I got on floor , (silly me!) , crawled to bed thinking I will manage to pull myself up. But no. Thankfully Eliza was here. She had to place my left leg at right angles to the floor, then support me from the waist whilst I used all my energy to flop onto my bed.. We got there!!!!
Today having washed hair, I decided to leave it to dry without its usual blow-dry. Not a good look. Rebecca visited and has fixed a mirror and my hair dryer by my bed. So no more bad hair days!!! Yey!
The adjustment re cooking: I love roast dinners... And quite honestly am getting sick to death of microwaved meals. So this evening for dinner I'm planning pork chops, stuffing, mashed potato ( a concession, found in fridge from M& S), with gravy and frozen veg.
So at 5:00 I chopped onion to add to stuffing mix... Good tip, it tastes rather better .... But to chop I have to wedge myself against work top.. This takes a lot of energy. Undaunted I fill kettle with water. Very difficult to lift from sink to socket but achieved! Yey! Kettle boils . Now to lift again. Its so so heavy I splurge too much water in, never-mind, add more stuffing mix. It spills! Remember, all this time I'm standing only because I'm taking most of my weight pushed against the work top. So now I have stuffing ready. But have to clear mess. Some on floor. No hope of clearing up! And cleaner doesnt come agin till friday.. At this rate I'll have mice!! Thank goodness its 5:57 so 3 mins early I allow myself a drink! The rest of the meal will be cooked when I've rested!
6:00 News now! See how the rest of the world is coping.
I expect ill eat my dinner about 8:00, not too long to wait! But pre ALS, it would have been sorted and I could plan to eat when I wished, and not just when my energy levels allowed me to complete cooking. RATS!!!
Still it will be worth the wait!
HUG ME, I'VE GOT MND
Sunday, 29 July 2012
HELPFUL DAUGHTERS
My eldest daughter Eliza came to help this weekend .we got loads of clearing done, just some art equipment left in the attic.
Liza brought down boxes and we went through them.
We were so happy when we found really special things that we knew we wanted to keep.
For Chrissie we found her"Ellie's".chrissie had a pink Ellie which she loved so much, and which got so mucky, I had to make her a new Ellie.
My thoughts were that they would each take it in turns to be loved. Oh no! She then had two, one under each arm! Chrissie also has a numnie... A dummy to the rest of the world! I always got orange ones from Boots...thinking that we wouldn't try to hide the fact she had a numnie!
In one of the treasure boxes a numnie was found, but now it has been thrown away...the rubber had completely perished! Ahhh, end of the numnies, but Ellies still live on.
For Eliza we found many things as she is like me ,and loves treasures...BUT-we did find a special tape. It's of dad playing the organ, then Chrissie reciting nursery rhymes and finally Eliza talking about what she had for Christmas.
What treasures.There were loads of press cuttings of dads performances and photos and even his BBC 1934 diary , with recording times indicated.
Chrissie and Andy were up the weekend before and some boxes were cleared then too.
Sadly, we didn't have time to read everything, so I suggested to Liza that when I'm more disabled, we'll get down a box and go through it all properly. That will be such a great thing to do when I'm less able to get out and about.
One sadness. My thoughts went towards my own mum as my girls were helping me.
I can remember that when I visited, mum used to ask me to tidy up her eyebrows. Now every woman knows how irritating it can be if you want to have tidy brows and have to wait. I now have mine done every 3-5 weeks. But know beauty salons exist to help.
Years ago in the Forest of Dean ,there were no such places. You had your weekly wash and set, loads of lacquer and at was it.
SO I can remember mum asking me to help with this simple task... And very rarely did I fit it in... I can remember saying, I'll do it next time...that would be 2-3months hence. (we lived a long way away).
But how unwittingly cruel I was. I feel so sorry for that now. If only we could go back...
So I am doubly grateful to my daughters and to all the other people who help me. I couln't really manage without you.
The fact that I do have so much help allows me to fight this terrible disease. I want to be with you all for as long as possible.
HUG ME,I'VE GOT MND
Liza brought down boxes and we went through them.
We were so happy when we found really special things that we knew we wanted to keep.
For Chrissie we found her"Ellie's".chrissie had a pink Ellie which she loved so much, and which got so mucky, I had to make her a new Ellie.
My thoughts were that they would each take it in turns to be loved. Oh no! She then had two, one under each arm! Chrissie also has a numnie... A dummy to the rest of the world! I always got orange ones from Boots...thinking that we wouldn't try to hide the fact she had a numnie!
In one of the treasure boxes a numnie was found, but now it has been thrown away...the rubber had completely perished! Ahhh, end of the numnies, but Ellies still live on.
For Eliza we found many things as she is like me ,and loves treasures...BUT-we did find a special tape. It's of dad playing the organ, then Chrissie reciting nursery rhymes and finally Eliza talking about what she had for Christmas.
What treasures.There were loads of press cuttings of dads performances and photos and even his BBC 1934 diary , with recording times indicated.
Chrissie and Andy were up the weekend before and some boxes were cleared then too.
Sadly, we didn't have time to read everything, so I suggested to Liza that when I'm more disabled, we'll get down a box and go through it all properly. That will be such a great thing to do when I'm less able to get out and about.
One sadness. My thoughts went towards my own mum as my girls were helping me.
I can remember that when I visited, mum used to ask me to tidy up her eyebrows. Now every woman knows how irritating it can be if you want to have tidy brows and have to wait. I now have mine done every 3-5 weeks. But know beauty salons exist to help.
Years ago in the Forest of Dean ,there were no such places. You had your weekly wash and set, loads of lacquer and at was it.
SO I can remember mum asking me to help with this simple task... And very rarely did I fit it in... I can remember saying, I'll do it next time...that would be 2-3months hence. (we lived a long way away).
But how unwittingly cruel I was. I feel so sorry for that now. If only we could go back...
So I am doubly grateful to my daughters and to all the other people who help me. I couln't really manage without you.
The fact that I do have so much help allows me to fight this terrible disease. I want to be with you all for as long as possible.
HUG ME,I'VE GOT MND
Thursday, 26 July 2012
A VERY EXPENSIVE HOUR!!
Between 1:00 and 2:00 I had two big expenses..
Firstly the car. It appears that had I had all the adaptations done prior to accepting the car, I would have had help and discounted rates for the adaptations. I wasn't told this. As it is now I have to pay the total. I found out the prices £1063 for the lock down, £1880 for the wheel insert accelerator...
I emailed David who has been brokering this for me... he has suggested getting a second wheelchair which will more easily go into the van using a simple lock down. This could be a less expensive option, especially if I could find a second hand one... but how on earth do I explain to the NHS that the special chair that they have provided me with is not of any use in the car, and I'm now using my own... However I will use the special chair indoors.. its special because it tilts and thus takes pressure off my back, so it is necessary.
Watch this space.
Whilst all these conversations were going on, Bosch man arrived. His visit £89 . He found that the compressor has gone in Fridge Freezer. New compressor £463! But not advised , a new fridge freezer advised.
So this afternoon I viewed endless f f's on line, but as it is part of a fitted kitchen then I need a person to check measurements and fit the FF... I might have sorted this, might! But even so this will be a min of £325 incl fitting plus the £89 already paid.!!
Why cant anything be simple!!
Once again, if I wasn't so exhausted by all this, I would weep... too tired to weep!!!
HUG ME, I'VE GOT MND
Firstly the car. It appears that had I had all the adaptations done prior to accepting the car, I would have had help and discounted rates for the adaptations. I wasn't told this. As it is now I have to pay the total. I found out the prices £1063 for the lock down, £1880 for the wheel insert accelerator...
I emailed David who has been brokering this for me... he has suggested getting a second wheelchair which will more easily go into the van using a simple lock down. This could be a less expensive option, especially if I could find a second hand one... but how on earth do I explain to the NHS that the special chair that they have provided me with is not of any use in the car, and I'm now using my own... However I will use the special chair indoors.. its special because it tilts and thus takes pressure off my back, so it is necessary.
Watch this space.
Whilst all these conversations were going on, Bosch man arrived. His visit £89 . He found that the compressor has gone in Fridge Freezer. New compressor £463! But not advised , a new fridge freezer advised.
So this afternoon I viewed endless f f's on line, but as it is part of a fitted kitchen then I need a person to check measurements and fit the FF... I might have sorted this, might! But even so this will be a min of £325 incl fitting plus the £89 already paid.!!
Why cant anything be simple!!
Once again, if I wasn't so exhausted by all this, I would weep... too tired to weep!!!
HUG ME, I'VE GOT MND
Wednesday, 25 July 2012
THE WHEEL-CHAIR/CAR SAGA,, A DIFFICULT AFTERNOON
Today was a busy day.. Rebecca came to move push zimmer into car, as she arrived early she managed to empty dishwasher , load dishwasher and fold and put away washing. So a great start. Thankyou Rebecca and Iris.
Without a cleaner ( she's on holiday) this week, it has been difficult.. and also managing without a fridge/freezer.. sadly, I've got behind in tidiness, as to tidy takes so much energy. Help from good friends is invaluable.
Last evening I went out, and was so grateful for lifts, but when you cant move yourself in a push wheel-chair, you can feel quite disadvantaged and quite vulnerable, you cant move yourself to be sociable.
I seem to get the feeling that others don't know how to approach us, ie the us with MND. But my view on this is, that we,who have MND, and are trying to cope ,....................... please people do give us your support. We are just normal people who have a shit illness!
Anyway all my difficulties were due to end today.. I was supposed to get wheel chair, then take it on to Brookes Miller at Elland to be measured, to have lock-down fitted. This would have meant that I would be independent and free in so many ways and would collect car on Friday...
Yes, I would need help to charge chair, and to get me from back to front of home. But I did realise I could get neighbours to give me a lift .......or even ring a taxi to do the move. £3 would be a small price to pay for the freedom I would have...
So after a visit to Misty Morn, to check on paint colours, I drove to Wheelchair services in Halifax.
We did tests and found that when I reversed the wheels caught the foot rests and scraped my ankles. Realising that if the chair was tilted then this problem was solved. Then on to kerb climbing! Wow how terrifying is this. You have to approach kerb with speed and keep going. if you don't keep up speed then you get stuck! To get off curb you have to approach backwards . Haven't got the vocab to describe this hanging and bumping in mid air!! Believe me I shall avoid kerbs wherever possible. Heaven help any person who parks in front of a dropped curb from now on ... they will so get the edge of my tongue!!
Unless you have these challenges to face you simply don't know how hard they are.
Olympic games , we all deserve gold medals!!
So, with new shiny wheel chair in back of green van, I set off for Elland. Getting used to controls now... feeling good.. freedom is nigh!!
Get to garage dept. Having looked at car and chair, there was much shaking of heads. The lock down will need to be special as the height of the chair is slim, any low lock down will scrape getting into van and also will scrape on any rough surface.. even including door bars between rooms.... so no use... The appropriate lock-down will cost £1000.
I had been given to understand that whatever lock down I needed would be free from Motability. I believe I have been mislead.
SO... not only do I not have planned freedom this Friday.. a weekend of fun with Lisa, the ability to go Chrissies Baby shower ( which she has planned with a place on mind with ramps and disabled toilets). but also I still can't even get into doctors, cant go round shops without a pusher...etc etc .... and at the end this it could all cost £1000.
£1000 in other terms would be 60-70 hours of a carer.
Waiting another month could be 1/24 th of my life.. It has been 3 months, .........1/8 th of my life waiting for wheel chair, and since DLA award in Jan, (when I could have had a car, but have waited to get the right one), it's been a possible 1/4 of my life...
( these fractions worked out on MNDA expectation of life of 2 years..even if its 3 yrs or longer. it is doubtful that I will manage to drive round, and not need considerable help after 2 years.)
Dramatic these effects....
Most importantly it's the mental effect not being free,the mental effect of having had to wait , patiently, for the wheel chair, and yet to find that I still can't use it...
This is so, so , terrible... much more than frustrating.....you cant imagine.
I want to use, live my life for as long as I have.
If I were rich, so many of these problems wouldn't exist... but I'm not.... where is the morality in this.... I've been an honest, diligent worker all my life.
I don't mean to be greedy, and I do realise that there are many others in need, but get a grip government, this is simply not good enough...
HUG ME, I'VE GOT MND
Without a cleaner ( she's on holiday) this week, it has been difficult.. and also managing without a fridge/freezer.. sadly, I've got behind in tidiness, as to tidy takes so much energy. Help from good friends is invaluable.
Last evening I went out, and was so grateful for lifts, but when you cant move yourself in a push wheel-chair, you can feel quite disadvantaged and quite vulnerable, you cant move yourself to be sociable.
I seem to get the feeling that others don't know how to approach us, ie the us with MND. But my view on this is, that we,who have MND, and are trying to cope ,....................... please people do give us your support. We are just normal people who have a shit illness!
Anyway all my difficulties were due to end today.. I was supposed to get wheel chair, then take it on to Brookes Miller at Elland to be measured, to have lock-down fitted. This would have meant that I would be independent and free in so many ways and would collect car on Friday...
Yes, I would need help to charge chair, and to get me from back to front of home. But I did realise I could get neighbours to give me a lift .......or even ring a taxi to do the move. £3 would be a small price to pay for the freedom I would have...
So after a visit to Misty Morn, to check on paint colours, I drove to Wheelchair services in Halifax.
We did tests and found that when I reversed the wheels caught the foot rests and scraped my ankles. Realising that if the chair was tilted then this problem was solved. Then on to kerb climbing! Wow how terrifying is this. You have to approach kerb with speed and keep going. if you don't keep up speed then you get stuck! To get off curb you have to approach backwards . Haven't got the vocab to describe this hanging and bumping in mid air!! Believe me I shall avoid kerbs wherever possible. Heaven help any person who parks in front of a dropped curb from now on ... they will so get the edge of my tongue!!
Unless you have these challenges to face you simply don't know how hard they are.
Olympic games , we all deserve gold medals!!
So, with new shiny wheel chair in back of green van, I set off for Elland. Getting used to controls now... feeling good.. freedom is nigh!!
Get to garage dept. Having looked at car and chair, there was much shaking of heads. The lock down will need to be special as the height of the chair is slim, any low lock down will scrape getting into van and also will scrape on any rough surface.. even including door bars between rooms.... so no use... The appropriate lock-down will cost £1000.
I had been given to understand that whatever lock down I needed would be free from Motability. I believe I have been mislead.
SO... not only do I not have planned freedom this Friday.. a weekend of fun with Lisa, the ability to go Chrissies Baby shower ( which she has planned with a place on mind with ramps and disabled toilets). but also I still can't even get into doctors, cant go round shops without a pusher...etc etc .... and at the end this it could all cost £1000.
£1000 in other terms would be 60-70 hours of a carer.
Waiting another month could be 1/24 th of my life.. It has been 3 months, .........1/8 th of my life waiting for wheel chair, and since DLA award in Jan, (when I could have had a car, but have waited to get the right one), it's been a possible 1/4 of my life...
( these fractions worked out on MNDA expectation of life of 2 years..even if its 3 yrs or longer. it is doubtful that I will manage to drive round, and not need considerable help after 2 years.)
Dramatic these effects....
Most importantly it's the mental effect not being free,the mental effect of having had to wait , patiently, for the wheel chair, and yet to find that I still can't use it...
This is so, so , terrible... much more than frustrating.....you cant imagine.
I want to use, live my life for as long as I have.
If I were rich, so many of these problems wouldn't exist... but I'm not.... where is the morality in this.... I've been an honest, diligent worker all my life.
I don't mean to be greedy, and I do realise that there are many others in need, but get a grip government, this is simply not good enough...
HUG ME, I'VE GOT MND
EXCITING TIMES! WITH INEVITABLE CHALLENGES.
The major challenge this week has been to have milk that's not"off",and to keep my meds cool... The fridge freezer is defiantly caput!
Bosch man will come on Thursday. If its fixed, the Tesco man will come to restock fridge, have had to dump everything! Ho hum!!
Today I was measured for rise and recline chair. It has 6 buttons, thus multiple options. Eventually I can get comfy!
But whem i find it's time to choose fabric. I discover that as the cushion in the seat has to be special , to avoid pressure sores , it will be black or navy.. Well hope it's black as I have chosen a grey fabric..
Aesthetics don't seem to enter into some of these things.And I don't understand.
Don't fret, I'm grateful for the chair that will support me.. But why the hell can't it be in a decent fabric... Rats!!
This evening I have been out to a Samaritan meal, celebrating 25 yrs of SAMs in Halifax.it was lovely to see so many friends, but i was surprised by the response of some. It seemed some people stayed away, perhaps they can't deal with my illness. But I deal with it, so they shouldn't worry about chatting to me.
When I have my proper w.chair this won't be a problem. As it is , I'm put in a place and am not able to circulate, as I said , when I can circulate then any tension will be released.
So, tomorrow is a RED. letter day. The day I've been waiting for for over 2 months.. I get the outdoor/ indoor wheelchair! Yey!
I am to go to wheelchair services at 2:30 to do another road test...which I will pass. Then the chair will be loaded in green van, and I'll take it to Brooke's Miller at Elland. There they will do the measurements for lock down.
Now there comes a problem: i have been told I don't leave car, but I can't see how the work will be done if I don't.... So if I do have to leave it, then I beg a lift off a n other at the garage or I pay for a taxi! What the hell!
Then on Friday I go to Elland to get car with w.chair fitted. Ill then be using the w.chair as the driving seat.
Liza arrives at about 6. We are supposed to start packing , but I so want to enjoy the freedom of being mobile, that may come first!!
There are probs re charging chair and getting from back to front to get in house... But these are not impossible hurdles..when I've sorted it all out I'll write about it....
But for now it's bedtime. I'm shattered but so excited about the step nearer to some freedom that I will take tomorrow
...having looked at the last sentence perhaps the word step was not the best one to use (well if your legs don't work you don't take many steps!!). But you all know what I mean.
HUG ME,I'VE GOT MND
Bosch man will come on Thursday. If its fixed, the Tesco man will come to restock fridge, have had to dump everything! Ho hum!!
Today I was measured for rise and recline chair. It has 6 buttons, thus multiple options. Eventually I can get comfy!
But whem i find it's time to choose fabric. I discover that as the cushion in the seat has to be special , to avoid pressure sores , it will be black or navy.. Well hope it's black as I have chosen a grey fabric..
Aesthetics don't seem to enter into some of these things.And I don't understand.
Don't fret, I'm grateful for the chair that will support me.. But why the hell can't it be in a decent fabric... Rats!!
This evening I have been out to a Samaritan meal, celebrating 25 yrs of SAMs in Halifax.it was lovely to see so many friends, but i was surprised by the response of some. It seemed some people stayed away, perhaps they can't deal with my illness. But I deal with it, so they shouldn't worry about chatting to me.
When I have my proper w.chair this won't be a problem. As it is , I'm put in a place and am not able to circulate, as I said , when I can circulate then any tension will be released.
So, tomorrow is a RED. letter day. The day I've been waiting for for over 2 months.. I get the outdoor/ indoor wheelchair! Yey!
I am to go to wheelchair services at 2:30 to do another road test...which I will pass. Then the chair will be loaded in green van, and I'll take it to Brooke's Miller at Elland. There they will do the measurements for lock down.
Now there comes a problem: i have been told I don't leave car, but I can't see how the work will be done if I don't.... So if I do have to leave it, then I beg a lift off a n other at the garage or I pay for a taxi! What the hell!
Then on Friday I go to Elland to get car with w.chair fitted. Ill then be using the w.chair as the driving seat.
Liza arrives at about 6. We are supposed to start packing , but I so want to enjoy the freedom of being mobile, that may come first!!
There are probs re charging chair and getting from back to front to get in house... But these are not impossible hurdles..when I've sorted it all out I'll write about it....
But for now it's bedtime. I'm shattered but so excited about the step nearer to some freedom that I will take tomorrow
...having looked at the last sentence perhaps the word step was not the best one to use (well if your legs don't work you don't take many steps!!). But you all know what I mean.
HUG ME,I'VE GOT MND
Sunday, 22 July 2012
STUCK ON FLOOR, IN CHAIR, TWICE!
After a great weekend with Chrissie and Andy..they helped with so many jobs and took me out shopping... They left...and I went into the garden to enjoy the sunshine
FIRST TIME STUCK :
I found, for the first time I couldn't get out of the patio chair.Fortunately Steve was in his garden and helped me up. Thankyou.
SECOND TIME STUCK:
My fridge freezer has stopped working, having signed up to a service which answers problems, it was suggested I turn off for 6 hrs. SO I decided to turn on fridge after 8 hrs... Then I simply couldn't get off floor. I tried using w.chair as support, I trid using rise and recline chair to lift me. . After nearly 30 mins of trying I thought I had two choices.... Press button and get help via fall detector people or ring neighbours Rebecca and Tom. I decided on the latter , as if they did answer , then they were closer and quicker... Thank goodness they answered and Tom helped me off floor...Rebecca stayed a while till I was calm. Thankyou.
so I realise there is progress... A week ago I would have been able to have got up from floor with the help of higher chair to crawl to. BUT This is no longer a possibility... RATS! This is such a rotten disease ......
HUG ME, I'VE GOT MND
FIRST TIME STUCK :
I found, for the first time I couldn't get out of the patio chair.Fortunately Steve was in his garden and helped me up. Thankyou.
SECOND TIME STUCK:
My fridge freezer has stopped working, having signed up to a service which answers problems, it was suggested I turn off for 6 hrs. SO I decided to turn on fridge after 8 hrs... Then I simply couldn't get off floor. I tried using w.chair as support, I trid using rise and recline chair to lift me. . After nearly 30 mins of trying I thought I had two choices.... Press button and get help via fall detector people or ring neighbours Rebecca and Tom. I decided on the latter , as if they did answer , then they were closer and quicker... Thank goodness they answered and Tom helped me off floor...Rebecca stayed a while till I was calm. Thankyou.
so I realise there is progress... A week ago I would have been able to have got up from floor with the help of higher chair to crawl to. BUT This is no longer a possibility... RATS! This is such a rotten disease ......
HUG ME, I'VE GOT MND
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