Baby's due date! Morning and no baby. Eliza, Andy shattered.... well, and Chrissie too....
Tom had planned to visit as a stop over on a bike ride. We cancelled this as he had offered to take me to see new baby, and we didn't know when/if we would be setting off.
Surely baby would come soon so we planned to leave at noon on Friday, Their car back from service with new tyres and full tank of petrol, we're raring to go!!!
Still no baby!
Sofa arrives, Barry and Fran had moved the leather chairs into the garage , ready for this.
It arrived, sat like a bright pink jewel. I was so pleased. I sat on it, very comfy.... and then found I couldnt get off. The delivery men lifted me..Sad for me, but great for visitors to enjoy.
Still no baby.
But things are moving along. C now in induction room. A can only stay till 10 as she's not fully in labour... her will be called if/when this happens. Eliza goes home for some well needed sleep.
I'm still in a tizz and go to bed in the early hours.
HUG ME, I'VE GOT MND
Monday, 17 September 2012
WEDNESDAY 5TH SEPT
Today I had planned loads of visitors and some action ...
BUT the day, most importantly, started with a call from Andy to say Chrissie had started in labour.. I immediately went in to Tizz mode, had contractions,(!!!!) felt generally very anxious..... It seemed so hard being so far away and unable to get near Chrissie...
Sue came and we did more putting away. She kept me on task as I was in such a tizz.!!!! She brought a plated meal, and lovely sandwiches for lunch , As it was sunny we sat outside.Sue put picnic on table on lawn, and asked me which side I wished to sit... She hadn't realised that I cant go on the lawn in the wheelchair.. So I sat on path, not far away, and we enjoyed the sunshine..
No Baby.......
At 2:00 the podiatrist, Sarah, came. My left leg /foot is sooooo floppy that a new support might have been the answer. She took this thing from its box. Horror!! It was a clear plastic foot base with a 12" wide strip of plastic to go up the back of your leg, attached with Velcro. It looked so alien, and I couldn't bend at all in it. So Sarah decided also that it was not to be for me.. another black foot -up on its way! This will be my third, and whilst they aren't comfy, my foot is reasonably supported. Without this my foot simply flops limply! When I move it is necessary to wear it, as my foot goes under itself and I roll over it. So if I am to get walking again I need a new stroger support... the old one is now not very strong, elastic gives eventually ..
So Chrissie back from hosp visit, gentle contractions and she's coping with Andy and Liza, at home.....
Bethan OT, came at 4:30 delivering a zimmer. As I haven't walked since the fall in Tod it is important to try to get back on my feet, and the only way is with a zimmer.
No baby..................
Richard had planned to come up with new Misty Morn nameplate and to put up brackets for hanging baskets. The lovely ones, given to me by Tom and Rebecca and Iris, are on the bench awaiting hanging. But Bonsalls close for Sept break, and no brackets till then!
Chrissie still in labour........Plan is to go in at 8 in the morn if no further on!!!!
But contractions increased and Chrissie went in... A and E up all night in turns with C... no baby yet!
HUG ME, I'VE GOT MND.
BUT the day, most importantly, started with a call from Andy to say Chrissie had started in labour.. I immediately went in to Tizz mode, had contractions,(!!!!) felt generally very anxious..... It seemed so hard being so far away and unable to get near Chrissie...
Sue came and we did more putting away. She kept me on task as I was in such a tizz.!!!! She brought a plated meal, and lovely sandwiches for lunch , As it was sunny we sat outside.Sue put picnic on table on lawn, and asked me which side I wished to sit... She hadn't realised that I cant go on the lawn in the wheelchair.. So I sat on path, not far away, and we enjoyed the sunshine..
No Baby.......
At 2:00 the podiatrist, Sarah, came. My left leg /foot is sooooo floppy that a new support might have been the answer. She took this thing from its box. Horror!! It was a clear plastic foot base with a 12" wide strip of plastic to go up the back of your leg, attached with Velcro. It looked so alien, and I couldn't bend at all in it. So Sarah decided also that it was not to be for me.. another black foot -up on its way! This will be my third, and whilst they aren't comfy, my foot is reasonably supported. Without this my foot simply flops limply! When I move it is necessary to wear it, as my foot goes under itself and I roll over it. So if I am to get walking again I need a new stroger support... the old one is now not very strong, elastic gives eventually ..
So Chrissie back from hosp visit, gentle contractions and she's coping with Andy and Liza, at home.....
Bethan OT, came at 4:30 delivering a zimmer. As I haven't walked since the fall in Tod it is important to try to get back on my feet, and the only way is with a zimmer.
No baby..................
Richard had planned to come up with new Misty Morn nameplate and to put up brackets for hanging baskets. The lovely ones, given to me by Tom and Rebecca and Iris, are on the bench awaiting hanging. But Bonsalls close for Sept break, and no brackets till then!
Chrissie still in labour........Plan is to go in at 8 in the morn if no further on!!!!
But contractions increased and Chrissie went in... A and E up all night in turns with C... no baby yet!
HUG ME, I'VE GOT MND.
TUESDAY SEPT 3RD
Today seems to have been a quite day with two helpers.. Linda and Roger. They worked so hard putting more stuff in the loft and helping ME on the road to being sorted.
Thankyou to them both , and everyone else, without whom I couldn't manage.
HUG ME, I'VE GOT MND
Thankyou to them both , and everyone else, without whom I couldn't manage.
HUG ME, I'VE GOT MND
Saturday, 15 September 2012
SEPTEMBER15TH, FIRST OF THE NON CATCH-UP WRITINGS!
This morning I woke with pain in my right hip. I had woken in the night also with pain in my left hip. I think this is because, whereas a person without MND would naturally turn in their sleep, then a person with MND, simply doesn't. There must be a muscle resistance to turning easily, and thus you don't.
I have been asked by social services if I need help turning in bed at night. So Far I've said no... but I can see a day when this will be necessary. For now I'm thinking , should I have a different mattress?...... Something to talk through with the OT and or Physio.
Got to kitchen , put kettle on, fed Meggie. Looked at her litter tray, another early morning job, clearing it out . BUT she hadn't used it until last night. Shock, I guess, and....BOY!!! did she use it!! So my next task was to bag it all up, put new litter in. Put bag in bin-bag and hope someone would visit and put bin-bag in bin. (I can.t get there at the moment, car parked wrongly, but after driving lesson today will park so that I can get there.
In doing litter tray I spilled (clean) litter over the hall-way carpet, and can't reach the dust-pan and brush. It is very difficult to get the chair into the utility room without getting stuck. This causes real probs on using the washer and the dishwasher............... more later.
Just settling to Muesli and coffee when I also texted Chrissie. Apparently Ray (Grandpa) not going over ,as Eliza's dog , Stomp, had, had flees! As new parents I understand that they are cautious, and I'm sure they will reach a balance between risk and and caution soon.
Whilst all this was going on Elsa phoned and visited with Deborah, made coffee, put on washer and dishwasher and put bag in bin . YEY!!
Showered. Just drying when knock at door, doorbell didn't work (!), Tom and Iris at door. Tom pushed me to bedroom and closed door , I dressed ,he made a cuppa. How lovely it was to see them both.
After they went I had two practise runs at locating the chair in the car. Good at getting in, first time both times... but getting out SCAREY!!!!! I never was any good at reversing!!!
Justine came at 3:30. I am doing the sketches which the photographer shows to the ladies of Calender Girls, on the stage . Play at Todmorden Hippodrome, opens Oct 10th.
I waited for Dennis , driving instructor... When he arrived we got (well he got ) drivers seat into car. We went for a drive. He realised how difficult it was for me, as hill starts v v difficult if not impossible. The answer to the problem is to disengage the accelerator from the brake.. which may be illegal... or move to a flat place like Norfolk!!
I didn't actually drive... He parked car so that now at least I can get to garage... but drivers seat in, ......no empty place for w..chair. Abandoned, till help is found.
I have spent £3000 on car and £3000 on adaptations.. and then there's my weekly Motability money!! .. and I still cant drive. I'm still not free. I'm so frustrated! I just want to weep. Im fighting MND.. I don't want to fght a B car too.. this is hard... so so hard. I feel alone and so B angry, so diolusioned so so B upset... words simply cant convey my anger and feelings...
Elsa came in tonight and we are to plan a campaign... £6000 brings a lot of taxis!!
Watch this space. Elsa is B mad on my behalf, and I am so grateful, because I so need help, so need an advocate.. I'm loosing the effort, don't have then strength, at the moment, to fight re cars and every thing else that daily life entails.
HUG ME, I'VE GOT MND.
I have been asked by social services if I need help turning in bed at night. So Far I've said no... but I can see a day when this will be necessary. For now I'm thinking , should I have a different mattress?...... Something to talk through with the OT and or Physio.
Got to kitchen , put kettle on, fed Meggie. Looked at her litter tray, another early morning job, clearing it out . BUT she hadn't used it until last night. Shock, I guess, and....BOY!!! did she use it!! So my next task was to bag it all up, put new litter in. Put bag in bin-bag and hope someone would visit and put bin-bag in bin. (I can.t get there at the moment, car parked wrongly, but after driving lesson today will park so that I can get there.
In doing litter tray I spilled (clean) litter over the hall-way carpet, and can't reach the dust-pan and brush. It is very difficult to get the chair into the utility room without getting stuck. This causes real probs on using the washer and the dishwasher............... more later.
Just settling to Muesli and coffee when I also texted Chrissie. Apparently Ray (Grandpa) not going over ,as Eliza's dog , Stomp, had, had flees! As new parents I understand that they are cautious, and I'm sure they will reach a balance between risk and and caution soon.
Whilst all this was going on Elsa phoned and visited with Deborah, made coffee, put on washer and dishwasher and put bag in bin . YEY!!
Showered. Just drying when knock at door, doorbell didn't work (!), Tom and Iris at door. Tom pushed me to bedroom and closed door , I dressed ,he made a cuppa. How lovely it was to see them both.
After they went I had two practise runs at locating the chair in the car. Good at getting in, first time both times... but getting out SCAREY!!!!! I never was any good at reversing!!!
Justine came at 3:30. I am doing the sketches which the photographer shows to the ladies of Calender Girls, on the stage . Play at Todmorden Hippodrome, opens Oct 10th.
I waited for Dennis , driving instructor... When he arrived we got (well he got ) drivers seat into car. We went for a drive. He realised how difficult it was for me, as hill starts v v difficult if not impossible. The answer to the problem is to disengage the accelerator from the brake.. which may be illegal... or move to a flat place like Norfolk!!
I didn't actually drive... He parked car so that now at least I can get to garage... but drivers seat in, ......no empty place for w..chair. Abandoned, till help is found.
I have spent £3000 on car and £3000 on adaptations.. and then there's my weekly Motability money!! .. and I still cant drive. I'm still not free. I'm so frustrated! I just want to weep. Im fighting MND.. I don't want to fght a B car too.. this is hard... so so hard. I feel alone and so B angry, so diolusioned so so B upset... words simply cant convey my anger and feelings...
Elsa came in tonight and we are to plan a campaign... £6000 brings a lot of taxis!!
Watch this space. Elsa is B mad on my behalf, and I am so grateful, because I so need help, so need an advocate.. I'm loosing the effort, don't have then strength, at the moment, to fight re cars and every thing else that daily life entails.
HUG ME, I'VE GOT MND.
MONDAY SEPT 3RD
Fran, my carer, arrived at 10:00. A change from originally planned. Originally it was that she came at 9 cooked my breakfast whilst I showered.. but this seemed to take most of the two hours, so a change of plan. Fran was to come at 10, I would then be up, and we would do things and have a snack mid morn.
I had made a list of things that needed doing. Things that, formerly, would take me only a short time, but now take ages!..... or things I cant do because of access...( And you simply can not believe how frustrating this all is!!!).... So, dishwasher emptied, washing machine emptied, bins sorted etc..
At 11 we had a snack of croissants from freezer, with halva and bananas, brought by Fran. We then sat , and did some paper work. Fran left and I completed a life style info sheet which, with DNA that I have given to Sheffield hosp, will contribute to research into reasons, trends , identifying MND possible victims!! (strong word , I know!!)... (and ,sorry weird sentence!!)
Bless them ,Tesco arrived on time, in the afternoon... the real steady rock of my life!!
Bethan OT, came late afternoon and we planned where I would need hand rails and also attached the fall detector service.
After Bethan left I called Fall detector to get key-safe put in lobby. I was told it was not possible to move key pad from Thorn Place.. a new one would have to be ordered! How daft I thought. Dafter still I rang environmental Health re refuse collection, As I'm disabled I don't have to lift bins down to road.. as was the case in Tod. All OK Ms Woodman. Ten mins later , phone call,.... No, not all OK Ms Woodman... You have to sign a form to say you are disabled at this house.
I'm still the same person, still paying council tax, actually even more disabled than when I first signed the form...
So... a dear lady comes from Hx to get me to sign a form saying I have MND and have DLA... if only things could have changed between addresses!! How magic that would be!!!
How stupid is all this... What a total waste of tax payers money!!!
Makes me very cross!!
HUG ME, I'VE GOT MND
I had made a list of things that needed doing. Things that, formerly, would take me only a short time, but now take ages!..... or things I cant do because of access...( And you simply can not believe how frustrating this all is!!!).... So, dishwasher emptied, washing machine emptied, bins sorted etc..
At 11 we had a snack of croissants from freezer, with halva and bananas, brought by Fran. We then sat , and did some paper work. Fran left and I completed a life style info sheet which, with DNA that I have given to Sheffield hosp, will contribute to research into reasons, trends , identifying MND possible victims!! (strong word , I know!!)... (and ,sorry weird sentence!!)
Bless them ,Tesco arrived on time, in the afternoon... the real steady rock of my life!!
Bethan OT, came late afternoon and we planned where I would need hand rails and also attached the fall detector service.
After Bethan left I called Fall detector to get key-safe put in lobby. I was told it was not possible to move key pad from Thorn Place.. a new one would have to be ordered! How daft I thought. Dafter still I rang environmental Health re refuse collection, As I'm disabled I don't have to lift bins down to road.. as was the case in Tod. All OK Ms Woodman. Ten mins later , phone call,.... No, not all OK Ms Woodman... You have to sign a form to say you are disabled at this house.
I'm still the same person, still paying council tax, actually even more disabled than when I first signed the form...
So... a dear lady comes from Hx to get me to sign a form saying I have MND and have DLA... if only things could have changed between addresses!! How magic that would be!!!
How stupid is all this... What a total waste of tax payers money!!!
Makes me very cross!!
HUG ME, I'VE GOT MND
SUNDAY 2ND SEPTEMBER
Today, Theresa came over and we did more, YES MORE, sorting , of drawers, boxes. Theresa brought me two lovely thin china mugs, purple with white spots.. so lovely.Thankyou.
In the afternoon Alice came with baby Flo and Di visited. Flo is sooo sweet and only took a short While before she opened up and chatted and played happily. So lovely to see them.
Then.. I cooked :pork chops, stuffing balls, roast potatoes and runner beans... took a total of 3 hrs. After this time you loose the will to eat! Most chucked in the recycling bin. Must find a way to eat healthily and get meals quickly!
HUG ME, I'VE GOT MND
In the afternoon Alice came with baby Flo and Di visited. Flo is sooo sweet and only took a short While before she opened up and chatted and played happily. So lovely to see them.
Then.. I cooked :pork chops, stuffing balls, roast potatoes and runner beans... took a total of 3 hrs. After this time you loose the will to eat! Most chucked in the recycling bin. Must find a way to eat healthily and get meals quickly!
HUG ME, I'VE GOT MND
INTENSITY
I have realised that the intensity of feelings which I felt on the days on which I didn't Blog, is not the same as when I Blog directly each day, ie not notes from my diary.
Therefore, what I plan to do is catch up on each day, but its now 15th Sept, write todays also, but save it and publish it when I do catch up.
Hope this makes sense! In this way I will not only catch up, but there will be a number of Blogs on the day I do which will have been written on the day they happened, ie starting today 15th!
The raison d'etre for my Blog, has always been to share my thoughts and feelings, as I live with MND... and I feel this is best done in this way.
Hope you agree, dear readers.
HUG ME, I'VE GOT MND
Therefore, what I plan to do is catch up on each day, but its now 15th Sept, write todays also, but save it and publish it when I do catch up.
Hope this makes sense! In this way I will not only catch up, but there will be a number of Blogs on the day I do which will have been written on the day they happened, ie starting today 15th!
The raison d'etre for my Blog, has always been to share my thoughts and feelings, as I live with MND... and I feel this is best done in this way.
Hope you agree, dear readers.
HUG ME, I'VE GOT MND
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