On a postcard, I could simply have ticked a box but then was given only a centimetre space in which to write any comments.
I tried , several times, to complete the form on line. Eventually I contacted the survey agency and they sent me a correct link.
Until I had sent this survey in I felt it inappropriate to write about it. However as it is now winging its way through the ether I will share . I was asked forstly if a friend or relative were to go in to the hospital, would I rcommend it.
If the friend or relative was in good health I would probably be ambivalent re recommendation.
BUT as I have MND, and for anyone else who is unable to weight
bare there are issues.
I need turning and nurses were surprised at this.
I asked for socks to be removed 6 times as I have a
neuropathy, I was told, “just a minute". They never did remove socks.
When getting me into bed I needed a pillow, as when I lay flat,
I have shortness of breath. Just a minute was a response!
I felt my specific needs were not understood or when they
were explained were ignored, making me feel very frightened and fearful for my
safety.
Whilst there was considerable fuss re covering my private
parts there was rank inconsideration when I needed the commode. The hoist was
used, after it was serviced! Then, when it was brought down it had dust on it.
I was placed in the harness and placed on the commode without the harness being
removed. I looked like a puppet. And how do I know this? Well, because I was placed
in front of a mirror. I had no choice but to look at myself! This was an
undignified thing to do to anyone and made me, once again, feel disregarded as
a person.
A man came in and fastidiously cleaned the window ledge with
a damp wipe. Others came in and wiped other bits. However no-one seemed to get
into the corners of the room. The corner appeared to be dusty and cobwebby,
though these may have been scratches in the paint-work.
The kindest people were the Consultant, his registrar, and
the anaesthetist and the water jug lady who filled two glasses for me. (I had
been asking for two glasses as I needed to drink and can't lift a jug, much
less pour from it!)
I had ordered my medication into two bags. Those for night and
those for morning. I also had one medication (an MAOI, about which no-one knew,
and didn’t appear to find out).This requires refrigeration. EVENTUALLY it was
put in a fridge. Much fuss was made re meds and having to list them. One bag
was taken. I pointed out there were two. I was told all would be well. Sometime
later someone returned and in a curt voice said there should be more meds than this!
(Speechless!) The list was made and a copy given to me. It didn’t include the
MAOI. So, I guess, my GP will think I don’t take them anymore!!(It's Ok, I'll
tell her and show her this feedback, should the need arise.
So, all in all, I am not happy with my care at Huddersfield.
I am however delighted that I suffered the lack of care to get the end result
of the procedure.
I know that I will have to return to have my catheter
changed in 3months. I am not looking forward to this.
So enough serious stuff... another Doctor !
HUG ME, I'VE GOT MND
No comments:
Post a Comment