Spent this morning at Calderdale Royal having a full lung-function test.
What it actually meant was: I had to get up early (not good, I'm always wobbly in the morning).
Rebecca gave me a lift to Halifax . (Thankyou).
I the huffed and puffed, and puffed and huffed into various tubes, bags.. sitting and laying down... for 2 3/4 hrs... I was quick it could have been 31/2 hrs!
I focussed on the times I used to dive and breathing came easily from then on. I feel that my ability to use my voice effectively in a crowd ( headteacher/ actor voice!) has helped my breathing.
So why was this done? In fact it didn't matter what today's results were.. it is a base-line. I will be tested every so often to see how my lung function decreases as my muscles get weaker.
Not a happy thought, but good that I start from a position of strength. But it was exhausting, all that breathing to order!!
It's all in a days work with MND!
HUG ME, I'VE GOT MND
Showing posts with label Diary. Show all posts
Showing posts with label Diary. Show all posts
Monday, 26 March 2012
Friday, 23 March 2012
CAR ASSESSMENT!
Sorry was too, too, tired to Blog last night. I spent the day at an NHS centre having an assessment for an adapted car.
Having left home at 11:30 to get to Ginnys , as she was taking me to Leeds, we eventually arrived home at 6:45... having stopped for much needed, fish and chips!
At the centre I had to do a strange test, crossing out E and F's in lines of upper case letters.. I got almost to the bottom line in the 1min 40sec allowed..... apparently this is good/fine!! I was asked why I wanted a car.. How long I had been driving ( 45yrs).. asked to read a yellow number plate, despite offering to read all... the accessors seemed to be following a script................. sadly,no concession to the person being assessed.... I did feel somewhat processed and dis-empowered.. I had gone thinking that this was my special day.. when professionals would help me to be able to choose an appropriate car!
Well having apparently passing all the tests in room 1...
I moved on to trying cars,
.( Via room 2 . Filled with the most difficult aids that I may have to deal with...... imagine rows of commodes, rows of naff chairs... and a continence room.... TERRIFYING!!)
You see. you have to choose the adaptations you might need, as to change these in the future costs! So whilst an automatic with a hoist for a wheelchair,would suit me at the moment (as my right leg is weak, but ok) I had to be assessed on hands only cars.
Well for a start, I have NEVER driven an automatic and despite my reiterating this, a level of competence with automatics, it seemed to be assumed.
The first car I tried had a ball steering mechanism, sited at the bottom of the steering wheel , with a push rod to brake and the same rod , but pull, to accelerate. After 1/2hr after driving round Armley I was shattered! My arms ached. So we then tried a steering ball on the top of the steering wheel, with a push brake but a door handle action to accelerate. My arms couldn't cope with the steering ball once again. So third go round Leeds, with a steering wheel ring which is the accelerator, and a push brake on a separate rod. This was by far the most comfortable as you have both hands on the steering wheel, except when braking... so this will be written into the assessment. I gather that having got through this, a letter/report will be written to Motability which may reduce the price of the adaptations... but I am still in the dark.
I now know sort of what I need... but don't know what wheel=chair I can have till the wall and lift are done.. this won't be done, till passed by a ctte... but the type of wheelchair which Calderdale issue is not findable on any web site... may be they are old models(?) but I won't know till the wall is built and this is on-going to a ctte and the planning...and I can't order a car till I know the dimensions of the wheelchair.......it's sort of like a chickens and eggs position ..................and what the hell comes first...!
And then, at the end, what car do I choose. ???
Well, today I have decided whatever I get from selling my Micra will not be saved ,but put towards a new car. I had hoped this would be savings, as theoretically ,you get a new car through Motability, but if you need adaptations they do cost...
So BMW here I come... !!!!! probably in my dreams!!!!!!.
.. .............but to answer my first question....................
Why do I need a car.. It's to be independant, to be able to visit my children, anD so many of you who have invited me to visit.............. That's why................ I JUST WANT TO BE ME!
...........and ,you know, it's Bloody Hard!!! but I'll keep going............
HUG ME, I'VE GOT MND
Having left home at 11:30 to get to Ginnys , as she was taking me to Leeds, we eventually arrived home at 6:45... having stopped for much needed, fish and chips!
At the centre I had to do a strange test, crossing out E and F's in lines of upper case letters.. I got almost to the bottom line in the 1min 40sec allowed..... apparently this is good/fine!! I was asked why I wanted a car.. How long I had been driving ( 45yrs).. asked to read a yellow number plate, despite offering to read all... the accessors seemed to be following a script................. sadly,no concession to the person being assessed.... I did feel somewhat processed and dis-empowered.. I had gone thinking that this was my special day.. when professionals would help me to be able to choose an appropriate car!
Well having apparently passing all the tests in room 1...
I moved on to trying cars,
.( Via room 2 . Filled with the most difficult aids that I may have to deal with...... imagine rows of commodes, rows of naff chairs... and a continence room.... TERRIFYING!!)
You see. you have to choose the adaptations you might need, as to change these in the future costs! So whilst an automatic with a hoist for a wheelchair,would suit me at the moment (as my right leg is weak, but ok) I had to be assessed on hands only cars.
Well for a start, I have NEVER driven an automatic and despite my reiterating this, a level of competence with automatics, it seemed to be assumed.
The first car I tried had a ball steering mechanism, sited at the bottom of the steering wheel , with a push rod to brake and the same rod , but pull, to accelerate. After 1/2hr after driving round Armley I was shattered! My arms ached. So we then tried a steering ball on the top of the steering wheel, with a push brake but a door handle action to accelerate. My arms couldn't cope with the steering ball once again. So third go round Leeds, with a steering wheel ring which is the accelerator, and a push brake on a separate rod. This was by far the most comfortable as you have both hands on the steering wheel, except when braking... so this will be written into the assessment. I gather that having got through this, a letter/report will be written to Motability which may reduce the price of the adaptations... but I am still in the dark.
I now know sort of what I need... but don't know what wheel=chair I can have till the wall and lift are done.. this won't be done, till passed by a ctte... but the type of wheelchair which Calderdale issue is not findable on any web site... may be they are old models(?) but I won't know till the wall is built and this is on-going to a ctte and the planning...and I can't order a car till I know the dimensions of the wheelchair.......it's sort of like a chickens and eggs position ..................and what the hell comes first...!
And then, at the end, what car do I choose. ???
Well, today I have decided whatever I get from selling my Micra will not be saved ,but put towards a new car. I had hoped this would be savings, as theoretically ,you get a new car through Motability, but if you need adaptations they do cost...
So BMW here I come... !!!!! probably in my dreams!!!!!!.
.. .............but to answer my first question....................
Why do I need a car.. It's to be independant, to be able to visit my children, anD so many of you who have invited me to visit.............. That's why................ I JUST WANT TO BE ME!
...........and ,you know, it's Bloody Hard!!! but I'll keep going............
HUG ME, I'VE GOT MND
Thursday, 15 March 2012
2588
2588 views of my Blog to date! Imagine, that seems like a lots to me. Would love more comments from people, they are so welcome. People in the USA do introduce yourselves.. I await responses, would be so good to hear from you and why you're reading my Blog. Perhaps you have MND too...?
This is a short Blog today, and earlier than usual.... I'm having a restful day to allow myself the energy for our exhibition planning meeting tonight. I'm also cooking a simple meal.. Southern fried chicken ( courtesy of M&S), jacket potatoes and sald.Dessert, ( a favourite of mine) with home-made choc sauce,..... if I have the energy left to combine the ingredients.
So , as I'm feeling brighter today, I shall sign off with a favourite piece of music, another one Dad used to play frequently.
( p.s.Thanks for reading).
HUG ME .I'VE GOT MND
This is a short Blog today, and earlier than usual.... I'm having a restful day to allow myself the energy for our exhibition planning meeting tonight. I'm also cooking a simple meal.. Southern fried chicken ( courtesy of M&S), jacket potatoes and sald.Dessert, ( a favourite of mine) with home-made choc sauce,..... if I have the energy left to combine the ingredients.
So , as I'm feeling brighter today, I shall sign off with a favourite piece of music, another one Dad used to play frequently.
HUG ME .I'VE GOT MND
Wednesday, 14 March 2012
100 THINGS TO DO BEFORE YOU DIE.....?
I guess we've all heard of this book ,or similar ones... 100 things to do before you're 50 etc..
My thoughts today have been slightly centred around this theme.
What the hell are my ambitions before I die. Gloomy thoughts, I know. I keep thinking there are things I should want to do.. but I can't ,for the life of me, think what they are. Yes I want to go to the Bahamas, but I had planned to go there this year ,anyway ..I would love my family to go with me, but I can't afford to take them, and because of their positions with little ones I guess they can't go, anyway.
Scott visited today. I am having an assessment for: a phone , which will alert when I fall; I was offered help to get me breakfast ( I declined) ;I am to have an air pillow which will help my position, to help breathing, (if I don't move up and down my muscles become weak and I cough, to get enough air); I am to talk to the wheel chair people; and finally he gave me the contact number for car assessment needs.... all of this to manage... and I heard the Rolling Stones are to have a 50th yr anniversary concert.. I'm just too tired to look at their web site. I'm too tired to have ambitions other than to cope with all I have to cope with... and simply don't have time for extras.How sad is this.
So I guess, when push comes to shove, this illness has taken away my energy, not my spirit, and the reality of all this is that I only seem to have energy to cope with immediate needs. This makes me sad, I feel I was formerly a person who took on challenges, filled every hour and lived life to a million per-cent. Now I'm left coping as best I can.. BUT, I do hope I'm still doing this to a million per-cent of my ability..
..... in which case I guess I'm still a person, and still successful.... though it doesn't feel like it always.
Sorry this has a miserable tone, but it's where I'm at today.
Good things to look forward to,... a meal with friends and planning of exhibition tomorrow .....and film with Tom on Friday.
.......... so need to give myself a shake.. after a sleep all will be well.. these down days aren't every day... but as this is a diary it wouldn't be fair not to include them, though I am loath to do so.
My aim is to write about the reality of my experience of MND... so here you have it... Hope we all sleep well and wake up to a bright new Friday. X
HUG ME, I'VE GOT MND
My thoughts today have been slightly centred around this theme.
What the hell are my ambitions before I die. Gloomy thoughts, I know. I keep thinking there are things I should want to do.. but I can't ,for the life of me, think what they are. Yes I want to go to the Bahamas, but I had planned to go there this year ,anyway ..I would love my family to go with me, but I can't afford to take them, and because of their positions with little ones I guess they can't go, anyway.
Scott visited today. I am having an assessment for: a phone , which will alert when I fall; I was offered help to get me breakfast ( I declined) ;I am to have an air pillow which will help my position, to help breathing, (if I don't move up and down my muscles become weak and I cough, to get enough air); I am to talk to the wheel chair people; and finally he gave me the contact number for car assessment needs.... all of this to manage... and I heard the Rolling Stones are to have a 50th yr anniversary concert.. I'm just too tired to look at their web site. I'm too tired to have ambitions other than to cope with all I have to cope with... and simply don't have time for extras.How sad is this.
So I guess, when push comes to shove, this illness has taken away my energy, not my spirit, and the reality of all this is that I only seem to have energy to cope with immediate needs. This makes me sad, I feel I was formerly a person who took on challenges, filled every hour and lived life to a million per-cent. Now I'm left coping as best I can.. BUT, I do hope I'm still doing this to a million per-cent of my ability..
..... in which case I guess I'm still a person, and still successful.... though it doesn't feel like it always.
Sorry this has a miserable tone, but it's where I'm at today.
Good things to look forward to,... a meal with friends and planning of exhibition tomorrow .....and film with Tom on Friday.
.......... so need to give myself a shake.. after a sleep all will be well.. these down days aren't every day... but as this is a diary it wouldn't be fair not to include them, though I am loath to do so.
My aim is to write about the reality of my experience of MND... so here you have it... Hope we all sleep well and wake up to a bright new Friday. X
HUG ME, I'VE GOT MND
Monday, 12 March 2012
COLOUR AND CORRIE!
OK to get the Corrie bit over first... somehow I've got hooked into Coronation Street again. Thought I'd left this addiction behind years ago!! But the murder story is unfolding, and apparently all will be revealed with in the month... so my addiction will end then!
COLOUR: Tony, my friend, and Tutor on the HND came for a cuppa and pizza today. We talked and talked. It was brill. He noticed that my palette has has changed. So we had a long talk about why, and what drives my paintings. It's always been the use of the paint, the feel of the application , as well as colour. I used to use pinks , purples and blues....
But:Thinking back ,my obsession with colour all began some 8 yrs ago. I visited Jo Roche at House of Colour. She analyses which colours suit you. This happens by putting scarves around you. Then as she withdraws them you see your face light up or go dull, according to the colour which predominates.It turns out that I am a "winter". Strong jewel colours suit me. If you look around my house you can see this.
In my wardrobe there were smart clothes, looking wonderful on the hanger, fitting well, but making me look plain dull! These were mainly the beige and browns, that I thought would suit my complexion..... until I had the revelation of which actual colours suit me.
This colour palette has continued through to my paintings. Not consciously. But analyzing it, it's true.. These strong colours are what I use.
Since the diagnosis, I have moved on to include reds, yellows in bright, bright shades. I thought this was because I have had such a shock. Talking about it with Tony , has made me think that probably its a "Carpe Diem", time with paint, as in other aspects of my life..
After all, I have two choices.. sit ,moan and wait to get weaker... OR.. approach life full-on, get on with it, and enjoy every moment,..... being as strong as possible. This doesn't mean that I do stuff all the time, ( I have to rest)... but even when my body is resting my brain is working.
Life is for living... and now I'm doing it in Technicolour! You'll see the results when/if you come to my exhibition to be held at The Platform Gallery, in May.
HUG ME , I'VE GOT MND
COLOUR: Tony, my friend, and Tutor on the HND came for a cuppa and pizza today. We talked and talked. It was brill. He noticed that my palette has has changed. So we had a long talk about why, and what drives my paintings. It's always been the use of the paint, the feel of the application , as well as colour. I used to use pinks , purples and blues....
But:Thinking back ,my obsession with colour all began some 8 yrs ago. I visited Jo Roche at House of Colour. She analyses which colours suit you. This happens by putting scarves around you. Then as she withdraws them you see your face light up or go dull, according to the colour which predominates.It turns out that I am a "winter". Strong jewel colours suit me. If you look around my house you can see this.
In my wardrobe there were smart clothes, looking wonderful on the hanger, fitting well, but making me look plain dull! These were mainly the beige and browns, that I thought would suit my complexion..... until I had the revelation of which actual colours suit me.
This colour palette has continued through to my paintings. Not consciously. But analyzing it, it's true.. These strong colours are what I use.
Since the diagnosis, I have moved on to include reds, yellows in bright, bright shades. I thought this was because I have had such a shock. Talking about it with Tony , has made me think that probably its a "Carpe Diem", time with paint, as in other aspects of my life..
After all, I have two choices.. sit ,moan and wait to get weaker... OR.. approach life full-on, get on with it, and enjoy every moment,..... being as strong as possible. This doesn't mean that I do stuff all the time, ( I have to rest)... but even when my body is resting my brain is working.
Life is for living... and now I'm doing it in Technicolour! You'll see the results when/if you come to my exhibition to be held at The Platform Gallery, in May.
HUG ME , I'VE GOT MND
Sunday, 11 March 2012
ANOTHER BRILL DAY
Today has been soooo good. Cuppa with Esther, and another cuppa AND cake with Tom , Rebecca and Iris... in the garden. (and Rebeccas Mum and Dad.) How lovely it is that we are having such sunshiny weather! Long may it reign... ie not rain!!!
The rest of the day was spent painting and listening to the radio. The Archers started my day and Top Twenty ended the radio for today... actually didn't even recognise the Number One .. and it's been there for 3 weeks..!!!. never mind I can cope without this knowledge.
I look forward to a good painting week .Tony( art tutor) visiting tomorrow and Ann later in the week.
Tom and I have a date on Friday to go to see The Woman in Black... he has read the book and is very excited about the film , I thought I was reading the same book, but it seems that I may be reading the wrong Woman In Black... how funny is this... but the one I'm reading is such fun, a real good thriller!! So I shall enjoy the film anyway.. For me a cuppa and Lemon Drizzle cake, for Tom a cuppa and a Magnum Classic... how cute that we know exactly what we have with each film and yet don't know that we are seeing the right film! (Tom is probably right with his thoughts!!)
Part of my Sunday radio morning is always Desert Island Discs... I keep trying to refine my 8 bits of music... it's impossible... and though this wouldn't be one of mine I think it's worth including. Sooooo remember watching The Perry Como show with Mum and Dad, and the song says a lots about my state of mind... Hope you agree!
The rest of the day was spent painting and listening to the radio. The Archers started my day and Top Twenty ended the radio for today... actually didn't even recognise the Number One .. and it's been there for 3 weeks..!!!. never mind I can cope without this knowledge.
I look forward to a good painting week .Tony( art tutor) visiting tomorrow and Ann later in the week.
Tom and I have a date on Friday to go to see The Woman in Black... he has read the book and is very excited about the film , I thought I was reading the same book, but it seems that I may be reading the wrong Woman In Black... how funny is this... but the one I'm reading is such fun, a real good thriller!! So I shall enjoy the film anyway.. For me a cuppa and Lemon Drizzle cake, for Tom a cuppa and a Magnum Classic... how cute that we know exactly what we have with each film and yet don't know that we are seeing the right film! (Tom is probably right with his thoughts!!)
Part of my Sunday radio morning is always Desert Island Discs... I keep trying to refine my 8 bits of music... it's impossible... and though this wouldn't be one of mine I think it's worth including. Sooooo remember watching The Perry Como show with Mum and Dad, and the song says a lots about my state of mind... Hope you agree!
HUG ME, I'VE GOT MND
Saturday, 10 March 2012
RESPONSES
It is so good when I get a response to my Blog... from Linda every day, and from Janet most days, (many,many thanks, my lovelies xxx). But, thankyou everyone else so much for your messages (not necessarily via the Blog), it makes me feel I'm not doing this in a vacuum. However from the stats I do realise that 35-40 people consistently read my Blog each day, nearly 2500 hits so far.,,, Amazing!!
I now have 5 full days with few visitors, and no appointments... YEY!
I love to see people but the thought of 5 days clear, so that I can put on my scruffy clothes and just paint. WONDERFUL!
Today I managed (just) to put pictures on a wall.. to finish drying, and also to clear the floor. It was getting a real challenge to move around without tripping!
I also completed another picture and did the penultimate coat on another.
So a successful day at the studio. I am managing, and really trying to accept my limited available energy . All is well. BUT...I so need your support, it really,really keeps me going.
HUG ME, I'VE GOT MND.
I now have 5 full days with few visitors, and no appointments... YEY!
I love to see people but the thought of 5 days clear, so that I can put on my scruffy clothes and just paint. WONDERFUL!
Today I managed (just) to put pictures on a wall.. to finish drying, and also to clear the floor. It was getting a real challenge to move around without tripping!
I also completed another picture and did the penultimate coat on another.
So a successful day at the studio. I am managing, and really trying to accept my limited available energy . All is well. BUT...I so need your support, it really,really keeps me going.
HUG ME, I'VE GOT MND.
WAR HORSE
Had a good day after 10 1/2hrs sleep. Rest really is the thing that helps manage your spirit and helps you to enjoy the quality time that you have.
I had a good lunch, a cuppa with Rebecca ( she admired,declined a ride on ,the chair lift !)
Then another rest,shower,rest and out to eat at the White Lion Hebden Bridge.( Crispy Duck pancakes followed by ice-cream).
Off to The Picture House.. trying hard to ignore the aggressive geese en route... though walking stick at ready to protect us!!! Not needed, fortunately, though would have been used if necessary!
The film was War Horse. I had heard that you needed lots of tissues.. actually mine are still in my pocket. Two bits stand out for me. As Joey ( the horse) was born, the relationship between mum and foal was simply lovely, (tissues nearly out at this point). And the part where a frightened Joey runs through barbed wire getting utterly tangled... this was an horrific scene.
Well worth seeing, but you may not need your tissues.
HUG ME , I'VE GOT MND
I had a good lunch, a cuppa with Rebecca ( she admired,declined a ride on ,the chair lift !)
Then another rest,shower,rest and out to eat at the White Lion Hebden Bridge.( Crispy Duck pancakes followed by ice-cream).
Off to The Picture House.. trying hard to ignore the aggressive geese en route... though walking stick at ready to protect us!!! Not needed, fortunately, though would have been used if necessary!
The film was War Horse. I had heard that you needed lots of tissues.. actually mine are still in my pocket. Two bits stand out for me. As Joey ( the horse) was born, the relationship between mum and foal was simply lovely, (tissues nearly out at this point). And the part where a frightened Joey runs through barbed wire getting utterly tangled... this was an horrific scene.
Well worth seeing, but you may not need your tissues.
HUG ME , I'VE GOT MND
Thursday, 8 March 2012
LOTS OF HUGS TODAY
My first brain-wave (Hug) was that I had breakfast in bed! Orange juice, Crunchy Nut Cornflakes and coffee.... all carried up, on my knee, courtesy of the chair lift! What a thrill!!
Next Hug was that my cover for the ipad arrived... now have cover, stylus and .....soon , very soon..... ipad!!
Next Hug a visit from Wilma and Sarah, who brought cakes and lots of updates on things happening in Hebden Bridge, particularly my ex-pupils... so good to know some are doing so well.
BUT the best Hug was, I rang the DLA to update them on my status re use of bath seat, zimmer etc and was told a decision has been made. I have been awarded the highest rate of mobility. This means that I will be able to have a car through the Motasbility scheme, ie a car which will be suited to my needs. How wonderful this news is. I am ok, just at the moment, for short journeys, but a car assessed for my needs will give me back confidence and freedom to go wherever. Best bit, I will be able to go and visit my girls... though as neither have a downstairs loo, that will be another hurdle to jump... but I will manage somehow! YEY!
Last Hug, Have been painting and feel my mojo is coming back. Below is, a not quite finished ,painting. I thought I would share it... hope you like it. (Not the best image I know but wait till you see it in real-life the tree, it's wonderful.).
Next Hug was that my cover for the ipad arrived... now have cover, stylus and .....soon , very soon..... ipad!!
Next Hug a visit from Wilma and Sarah, who brought cakes and lots of updates on things happening in Hebden Bridge, particularly my ex-pupils... so good to know some are doing so well.
BUT the best Hug was, I rang the DLA to update them on my status re use of bath seat, zimmer etc and was told a decision has been made. I have been awarded the highest rate of mobility. This means that I will be able to have a car through the Motasbility scheme, ie a car which will be suited to my needs. How wonderful this news is. I am ok, just at the moment, for short journeys, but a car assessed for my needs will give me back confidence and freedom to go wherever. Best bit, I will be able to go and visit my girls... though as neither have a downstairs loo, that will be another hurdle to jump... but I will manage somehow! YEY!
Last Hug, Have been painting and feel my mojo is coming back. Below is, a not quite finished ,painting. I thought I would share it... hope you like it. (Not the best image I know but wait till you see it in real-life the tree, it's wonderful.).
A good day then. Plenty of Hugs.But I'm greedy (!!!), and always need yours!!!!
HUG ME , I'VE GOT MND
Monday, 5 March 2012
OK,BETTER, BEST, VERY BEST
OK, well what else can you say.. the chair lift has certainly helped by saving me energy... but now it's suggested that an electric chair will save energy moving round the house. It's indeed a fact, but a next step... so OK.... but difficult. ( Don't think they even come in a choice of colours!!!).
BETTER: Ginny came over and we had cups of tea, red wine, food, and in between we got all the art stuff down from attic to art store-room ( ie bed 2). also in between I had a nap. Only a good friend would sit and read whilst you had a 30 min sleep. Thankyou,
BEST: Doing an exciting painting, I love it, though not complete yet I'll add it for your perusal. You have to look, then look further....
VERY BEST: Got a card today from Chrissie and Andy... and inside was a scan photo of my third grand-child. Their first. Wow what a wonderful surprise and so very very welcome. Yey!!!!
HUG ME, I'VE GOT MND
BETTER: Ginny came over and we had cups of tea, red wine, food, and in between we got all the art stuff down from attic to art store-room ( ie bed 2). also in between I had a nap. Only a good friend would sit and read whilst you had a 30 min sleep. Thankyou,
BEST: Doing an exciting painting, I love it, though not complete yet I'll add it for your perusal. You have to look, then look further....
VERY BEST: Got a card today from Chrissie and Andy... and inside was a scan photo of my third grand-child. Their first. Wow what a wonderful surprise and so very very welcome. Yey!!!!
HUG ME, I'VE GOT MND
Sunday, 4 March 2012
WHAT A DECISION TO MAKE
At 10:00 this morning I said goodbye to Pip and Sue. We had had a lovely time together and it was so lovely to see that we still had/have so much in common. So we waved goodbye in a flurry of toast crumbs...( the pave bread from Morrisons makes wonderful toast!)
I then listened to The Archers, drank coffee, and was about to change, when the phone rang.
A friend, who has recently inherited a bungalow, proposed a plan... He and his partner had thought and agreed that they would like to help me. The offer was that the bungalow would be decorated throughout (to my colour preferences.. ie.white), new kitchen and a bathroom to suit my needs.
Whilst this sounds too good to be true, the problems are: Its not in Tod and I would have to get to know people and I feel that as I weaken I don't have the energy to establish new relationships; Energy and stress to move, may be energy that I don't ever get back,...... and may speed up my demise; But, most importantly, I feel safe here, loved here, wanted here.
I cant get over how kind ,and out of the blue this offer was. But I have said, no thankyou. A perfectly lovely new home won't replace my cranky house with my fantastic neighbours.
I won't name you, you know who you are. I am so touched and grateful but for the reasons above won't be able to take up this so generous offer.
I feel very hugged tonight.
HUG ME ,I'VE GOT MND
I then listened to The Archers, drank coffee, and was about to change, when the phone rang.
A friend, who has recently inherited a bungalow, proposed a plan... He and his partner had thought and agreed that they would like to help me. The offer was that the bungalow would be decorated throughout (to my colour preferences.. ie.white), new kitchen and a bathroom to suit my needs.
Whilst this sounds too good to be true, the problems are: Its not in Tod and I would have to get to know people and I feel that as I weaken I don't have the energy to establish new relationships; Energy and stress to move, may be energy that I don't ever get back,...... and may speed up my demise; But, most importantly, I feel safe here, loved here, wanted here.
I cant get over how kind ,and out of the blue this offer was. But I have said, no thankyou. A perfectly lovely new home won't replace my cranky house with my fantastic neighbours.
I won't name you, you know who you are. I am so touched and grateful but for the reasons above won't be able to take up this so generous offer.
I feel very hugged tonight.
HUG ME ,I'VE GOT MND
Subscribe to:
Posts (Atom)