Steve arrived at 12:30 and moved a few bits, got my push wheel chair from garage and we set off for Northampton at12:45. The traffic was awful.. but we ended up waiting in a noisy place overlooking the motorway as C wasn't yet released from hosp.
I needed the loo and found that I couldn't get off the disabled toilet. Steve with his carers hat on lifted me off. So sad, It means that I will always have to carry my special toilet seat with me.. how discrete is this !!! Another bit of dignity stripped.
At4:30 Baby was fine , passed by paed. C needed blood test and thus it was that we sat outside their home from 5:30 . they arrived home 15 mins later.
It was so emotional. I wanted to get up and hug my daughter, but as we were both weak, though for differing reasons, It couldn't happen. MND is limiting is so many ways you don't even think of.
I got in the home. Steve and Andy lifting me over threshold. V difficult to maneuver push wheel chair... I now realise that I wont ever be able to enter their house without considerable help... so, so , sad.
Anyway, and THE BEST BIT, I got to cuddle baby for an hour. He slept peacefully in my arms. Opening his eyes once, and then I said , "He's opened his eyes"... and he immediately shut them.
He was so lovely, cuddly and perfect.. I cried a little, it was so emotional!
Anyway at 7ish, he was making noises that indicated he needed feeding, and he had done a poo... so it was time to go.
We got home at10:30, my ankles were like tree trunks, so swollen, but worth every moment.
HUG ME, I'VE GOT MND
I love reading your posts Nikki. I'm sad that you live alone, happy that you saw the baby and cuddled him- congratulations . My grandchild is due in November but I won't be able to cuddle it, sadly.
ReplyDeleteBeware disabled toilets - I got stuck on one in Alicante airport and my husband had to break the door lock to get me off! Not a pretty sight.
Check out my Facebook group if you need an online chat.xx
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